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Re: ADENOMYOSIS AND SYMPTOMS....ANYONE??? (LONG)
From: Tracy (anonymous@obgyn.net)
Tue Nov 23 07:45:35 2004
Hi Erin,
I thought your story was interesting. I just wanted to let you know
that your c-sections might not be the only reason your uterus is a mess.
I will be having my uterus taken out Dec 8th. I delivered both of my
children vaginally. I never had any miscarriages nor abortions. I
think some women just have tramatic births. The doc said I had lots of
scar tissue. I think this must be from where the placentas were
attached. I also had cryo surgery on my cervix due to damage during
labor. I don't feel that my deliverys were difficult at least not more
than anyone elses. Both of my children are considered normal births. I
also agree with the lack of knowlege people have about adenomyosis. My
sister is a nurse and has never heard of it. It's nice to know that
there are others with the same problems. I will gladly hand over my
uterus. It was good enough to carry 2 children in it so I am very
thankful. I also have a fertile husband. I conceived the first time
with both children. I feel so blessed compared to women who are having
difficulty. I will post after my surgery to inform everyone wether is
has helped. I know this might not be the answer for everyone but it is
for me. I feel that my life and family are complete. Thanks for
listening.
Tracy
At Sat, 20 Nov 2004, anonymous@obgyn.net wrote:
>
>I have adenomyosis, too. Just confirmed last week. I experience many
>of the same symptoms that Tracy describes (even once put my back out
>sitting on the toilet, and I'm in very good shape back there).
>
>Sometimes, posting to this board, I feel like an usurper (okay, not that
>strong, maybe just an imposter), because I don't feel the same kinds of
>pains as endo, nor do they seem extreme. So it's very comforting,
>albeit sad, to get a little feedback from others with adenomyosis. Seems
>most everyone I talk to about it knows what endometriosis is, but not
>adenomyosis.
>
>I haven't found out how advanced my adenomyosis is (if advanced is
>something that can be applied to this condition). I can say that my
>discomfort is increasing by leaps and bounds in the last year. Hopefully
>the results of my MRI indicate to my doctor that a course of action is
>called for. Not that this man has ever been lacking in his treatment of
>me, but far from it. Still, there's always this nagging worry,
>especially after reading all of these stories, that he'll tell me that
>things aren't advanced enough to cause me the pain I'm in.
>
>During my first pregnancy, a fibroid was spotted in my uterus. Perhaps
>coincidentally, my cervix failed to dilate and my son was born by
>emergency c-section. During my second pregnancy, the fibroid was again
>noted (different hospital, different u/s tech). When I went into labor
>with her, there was obviously something wrong, and the nurses were
>completely unable to pick up the contractions I was having on their
>monitors. They opted to break my sac and monitor the contractions
>vaginally, but they still didn't display correctly. Again, my cervix
>failed to dilate and my daughter was delivered by c-section.
>
>I've had a pretty good rate of success at guessing how my current
>uterine tribulations have caused problems historically, corroborated
>heavily by my doctor. What I'm assuming now is that in addition to PCOS
>and the fibroid, I already had some slight problems with adenomyosis
>before my first pregnancy. I believe I was able to conceive due to two
>things: being in very, very good physical shape on an excellent diet and
>an extremely fertile husband. I'd like to note that despite my
>precautions of diet and exercise, I still delivered both of my children
>by surgery. I am convinced that adenomysosis caused the complications
>with my first delivery, that the c-section allowed the adenomyosis to
>advance, making the second delivery also complicated.
>
>So I guess what I'm saying is: it's not impossible to conceive or bear
>children, but it might just be a little bit more complicated, especially
>at the end. And, too, I am certain that two c-sections are now costing
>me my uterus. Not that I mind: I'm grateful for these children I was
>told I could not have, and I don't plan to have any more, anyway.
>
>Cheers,
>
>Erin P.
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