Re: ADENOMYOSIS AND SYMPTOMS....ANYONE??? (LONG)
From: lisa (anonymous@obgyn.net)
Sun Nov 21 09:04:01 2004
Hi
I have adenomyosis as well as endometriosis and the symptoms are
unbearable at times. I was bleeding for all year round (approx!)
continuously before I was diagnosed via a hysteroscopy. The
hysteroscopy showed an enlarged uterus and was described as being
'boggy' and 'soft'. I am guessing that the painful spasms caused by
adenomyosis is harder to bear considering the uterus is tender. I have
since had the mirena coil inserted as my doc said this would help. It
has. The bleeding has completely stopped and I haven't bled since
January of this year (although I am not sure this is healthy and I have
so many spots on my face as a result!) but I am glad the bleeding
stopped as it was too much. The pain however is still there. My
experience of symptoms have been constant bleeding, distended feeling in
my pelvis and the feeling as if everything will drop out. As I have
both adenomyosis and endo I am not sure whether I am confusing the two
symptoms but I doubt it (I had endo a lot longer). I also have many
bowel symptoms but this may be due to the fact I have endo on my bowel.
I hope I have been of some help
Good luck
--
Lisa
At Sat, 20 Nov 2004, anonymous@obgyn.net wrote:
>
>I have adenomyosis, too. Just confirmed last week. I experience many
>of the same symptoms that Tracy describes (even once put my back out
>sitting on the toilet, and I'm in very good shape back there).
>
>Sometimes, posting to this board, I feel like an usurper (okay, not that
>strong, maybe just an imposter), because I don't feel the same kinds of
>pains as endo, nor do they seem extreme. So it's very comforting,
>albeit sad, to get a little feedback from others with adenomyosis. Seems
>most everyone I talk to about it knows what endometriosis is, but not
>adenomyosis.
>
>I haven't found out how advanced my adenomyosis is (if advanced is
>something that can be applied to this condition). I can say that my
>discomfort is increasing by leaps and bounds in the last year. Hopefully
>the results of my MRI indicate to my doctor that a course of action is
>called for. Not that this man has ever been lacking in his treatment of
>me, but far from it. Still, there's always this nagging worry,
>especially after reading all of these stories, that he'll tell me that
>things aren't advanced enough to cause me the pain I'm in.
>
>During my first pregnancy, a fibroid was spotted in my uterus. Perhaps
>coincidentally, my cervix failed to dilate and my son was born by
>emergency c-section. During my second pregnancy, the fibroid was again
>noted (different hospital, different u/s tech). When I went into labor
>with her, there was obviously something wrong, and the nurses were
>completely unable to pick up the contractions I was having on their
>monitors. They opted to break my sac and monitor the contractions
>vaginally, but they still didn't display correctly. Again, my cervix
>failed to dilate and my daughter was delivered by c-section.
>
>I've had a pretty good rate of success at guessing how my current
>uterine tribulations have caused problems historically, corroborated
>heavily by my doctor. What I'm assuming now is that in addition to PCOS
>and the fibroid, I already had some slight problems with adenomyosis
>before my first pregnancy. I believe I was able to conceive due to two
>things: being in very, very good physical shape on an excellent diet and
>an extremely fertile husband. I'd like to note that despite my
>precautions of diet and exercise, I still delivered both of my children
>by surgery. I am convinced that adenomysosis caused the complications
>with my first delivery, that the c-section allowed the adenomyosis to
>advance, making the second delivery also complicated.
>
>So I guess what I'm saying is: it's not impossible to conceive or bear
>children, but it might just be a little bit more complicated, especially
>at the end. And, too, I am certain that two c-sections are now costing
>me my uterus. Not that I mind: I'm grateful for these children I was
>told I could not have, and I don't plan to have any more, anyway.
>
>Cheers,
>
>Erin P.
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)