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Re: ADENOMYOSIS AND SYMPTOMS....ANYONE???
From: Tracy (anonymous@obgyn.net)
Tue Nov 16 21:26:45 2004
Hi Mindy,
I have adenomyosis!!!! I am scheduled for a partial hysterectomy on Dec
8th. I experience extremely heavy periods that are heavy for 4 to 5
days. I think I might be anemic due to this. My symptoms are severe
pelvic pain and I have trouble having bowel movements. During my period
and ovulation I can feel the exact location of my uterus. It feels like
a foreign object in my pelvic region. The doc did a lap and a D&C and
said my uterus is a mess inside. He said by having the hyst he feels
that it will help alot if not all of my pain. He lasered out some endo
on my right ovary and said I had a little in some other places too. When
I am able to have a bm it feels like I'm in labor. My uterus contracts
and everything. I have 2 children and sometimes I think a bm is worse
than actual labor. I take levsin to help me go! It takes away the sharp
cramping pains during a bm. I will post after my hyst to keep everyone
updated as to wether I think it helped me. I will not take lupron and I
cannot take birth control. Ask your doc if he thinks you need a D&C.
The lupron might help and so might ablation but they have the risk of
making you sterile. You need to weigh your risks against what you
believe is right for you. I hope this helps you. In my opinion I think
the D&C would probably help a little. Good luck with whatever you
choose to do.
Tracy
At Tue, 16 Nov 2004, Mandy wrote:
>
>Hi Mindy,
>
>I have Adenomyosis and decided to try Lupron therapy instead of
>Hysterectomy.
>
>I started having very heavy bleeding during men station years ago and an
>uncomfortable feeling in my lower abdomen that would keep me from
>sleeping. Then the periods were very irregular and heavy, and sometimes
>lasted for weeks. This went on for several years.
>
>I finally changed Doctors and the new Doctor put me on the Nuva Ring
>(Low Dose Birth Control) to try to regulate the periods. She thought
>that I had Endometriosis. I then started bleeding on July 8th and
>didn't stop. She decided to do an MRI. The MRI showed that the uterus
>was, as the doctor put it, HUGE and they suspected it was Adenomyosis.
>
>I was then sent to another Doctor who specializes in treating women who
>are still interested in bearing children. He explained that the only
>cure for this is Hysterectomy, however, Lupron therapy could shrink the
>uterus enough that I could conceive.
>
>I am 5.5 weeks into Lupron therapy and am still bleeding. I am anemic
>and still have discomfort that keeps me from sleeping.
>
>Let me know if there is anything else I can help with.
>
>Hope this helps, Mandy
>
>At Thu, 28 Jun 2001, Mindy wrote:
>>
>>I am still recovering from Surgery from Dr. R, but some of the
>>pain/discomfort I had before the surgery still remains. My periods are
>>no longer debilitating and I am not stuck on pain killer anymore!! I
>>know the surgery and trip to Bend was well worth it!!! What a terrific
>>doctor :-) I still have that constant uncomfortable pain/discomfort in
>>the mid-pelvic region almost all month long (especially when I sit for
>>long periods of time). It gets worse around mid-cycle. My follow-up
>>doctor says it could be healing pain and to give it 3-4 months (and he
>>is probably correct!), but I don't feel like I am healing anymore.
>>
>>My question is: What are the common symtoms of Adenomyosis? I have read
>>some things on the internet, however I am interested in hearing from
>>you.
>>
>>Thank you! Mindy M :-)
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