ENDO Messages for November, 2004: Re: Endo....again?

Re: Endo....again?

From: Addie (anonymous@obgyn.net)
Tue Nov 16 10:17:42 2004

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At Tue, 16 Nov 2004, Paige wrote: >
>I have had 5 laps and they removed my left tube and ovary on the fourth
>one. After lap 4 I finaly was on my way to feeling better. I seemed to
>have much worse problems on my left side and getting rid of that ovary
>helped a lot. You will still have a chance at having kids. I am 27,
>newly married, and want kids in the future. But I do not in any way
>regret having the one side removed. It gave me 3-4 years without pain!
>That seems like a long time when you go through all of this so often. I
>suggest having it removed, assuming that the other side is okay.
>
>Paige
>

Thank you so much Paige, I am definetly feeling very apprehensive about giving up my right ovary and tube (the other one is great). But it hurts and bad, and I don't like to take the pain meds, so usually I don't except to be able to sleep w/ the pain at night. When you had your laps, how did they remove the endo? Excision, laser, or cautery. I've had the excision. They put Interceed on my right ovary the last time that I had surgery for the adhesions. They put it on there to prevent adhesions from forming, but with all the pain I'm not convinced it worked. Anyways, It's so cool having someone my age to write to who has been through this "stuff". How did you feel right before the 4th surgery for your ovary removed? Should I ask the doc to just remove the adhesions again and try something different? I just don't know what to do, I'm so frustrated and scared about it. I'd love to chat more if you have the time. I noticed you've given quite a bit of support to a lot of women, thank you for that. in case you would like to email me, my address is asims@sav.southuniversity.edu. Thanks, Addie

>At Mon, 15 Nov 2004, Addie wrote:
>>
>>I had my first laparoscopy in February(stage IV endo), the pain came
>>back, my second surgery was in July (adhesions and some endo), after the
>>2nd surgery I received Depo Lupron in August, I just received my second
>>shot this month in the 6 month treatment. Much to my disappointment, I
>>am having all the tale,tale symptoms of this stupid endometriosis. Can
>>you tell, I'm just a little upset and frustrated about it. I feel so
>>helpless. The pain is much worse this time and only on the right side.
>>It feels like someone is sticking a hot-pocker in my right pelvic side.
>>It burns, aches, and just plain hurts. It has become a constant pain
>>throughout the day, so it doesn't do any good to ignore it. As my dad
>>says, "I'm sick and tired of being sick and tired." I really don't want
>>to have another surgery, but I'm afraid that I will. The doc says that
>>if he goes in again he would remove my right tube and ovary. I'm only
>>26 yr old and haven't had any children yet, but would like to. Has
>>anyone else had just their right tube and ovary removed and become
>>pregnant? I am so afraid now to even admit that I have pain to anyone,
>>when someone sees me grimace in pain and ask me why I just tell them i'm
>>hungry or something. I would love to be able to talk to someone out
>>there that can relate to my symtoms and the treatment that i've had, and
>>may have to have. Please someone help me!

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