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Re: I don't know to do!

From: ann (anonymous@obgyn.net)
Sun Nov 14 20:37:41 2004


At Sun, 14 Nov 2004, Heather wrote: >
>I don't know what to do, Help! Last January I was diagnosed
>with endo and put on the 6 months of lupron. It didn't help
>at all. The whole time I still had the horrible pain and I
>also bled quite a bit. After my final shot my doctor put me
>on Seasonale and that didn't help either, I spotted and bled
>for just about the whole time. After two months I called my doctor
>he took me off of it and put me on a 10 day regimen of Ovcon BCPs,
>three the first day then two for the next 9 days. These make me so
>sick , I was basically puking my brains out (not to be to graphic).
>I called by ob/gyn and stopped taking the pills. He said he
>doesn't know what else to do except maybe depot privera. My gyno
>is one of the most highly recomended in my area as a general ob/gyn
>I dont know about how he is with treating endo. I really hate being
>on all of these pills and shots, Nothing seems to help. Should I
>see a specialist? Or what? Can anyone help or has anyone else had
>these problems? Thank you!

HEATHER,

I KNOW EXACTLY HOW YOU FEEL. IF I WERE IN YOUR SHOES, I WOULD GO DIRECTLY TO A SPECIALIST. SEND YOUR CASE FILE AND SEE WHAT THEY HAVE TO SAY. DOESN'T HURT TO TRY.

I HAVE BEEN AWARE OF MY ENDO FOR 15 YEARS, HAD 3 LAPS AND STILL PLAYING THE GAME. I JUST FINISHED 6 MONTHS OF LUPRON WHICH WERE HELL. THE LUPRON REMOVED THE ENDO PAIN, BUT ADDED SIDE EFFECTS THAT WERE 10 TIMES WORSE THAN THE ENDO. EVERYONE IS DIFFERENT, BUT THIS IS WHAT I EXPERIENCED.

DECEMBER 9TH I AM HAVING SURGERY IN CALIFORNIA WITH DR. ANDREW COOK. THIS IS A BIG PRODUCTION SINCE I LIVE IN VIRGINIA. MY MOTHER IS FLYING WITH ME FROM OHIO. MY HUSBAND'S PARENTS ARE FLYING DOWN FROM MASSACHUSETTS TO WATCH OUR 2 BOYS DURING THE DAY. I WILL BE GONE FOR 10 DAYS.

I WILL BE HAVING THE EXCISION SURGERY WHICH I'VE NEVER HAD BEFORE. MY PREVIOUS 3 LAPS HAVE BEEN WITH THE LASER VAPORIZATION. I SENT MY FILES TO DR. COOK AND DR. ALBEE IN GEORGIA. BOTH FACILITIES REVIEWED MY FILES AND GAVE THEIR RECOMMENDATIONS. I FEEL BOTH ARE GREAT PLACES TO TURN TO FOR ADVICE AND I PERSONALLY LIKED THE WAY DR. COOK'S PROGRAM WORKED.

KEEP YOUR CHIN UP AND KEEP CHUGGING ALONG.

ANN




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