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Re: ANDOMYOSIS---- POSSIBLE HYSTORECTOMY

From: anonymous (anonymous@obgyn.net)
Fri Nov 12 10:01:50 2004


I think you mean adenomyosis.

First some facts. Adenomyosis is difficult to diagnose. MRI can be used to diagnose, but the only other way is through hysterectomy.

15% - 25% of women with chronic pelvic pain DO have adenomyosis.

Hysterectomy is a 100% cure of adenomyosis, the ovaries do not need to be removed as it occurs entirely within the uterus.

Cause is unknown but thought to be from trauman such as childbirth, abortion, C-Section and possibly tubal ligation. It is the penetration and growth of endometrial tissue (not endometriosis) from the uterine lining into the myometrium (uterine muscle).

This then causes swelling in the uterus, you continue to have periods but they can be very painful and you may seem to have a never-ending period as trapped blood and tissue are expelled through the constant efforts of the uterus to clear itself with contractions (the pain you feel).

There are non-hysterectomy options if you are not ready to end your child-bearing years but the success rate depends upon surgeon skill and extent of the adenomyosis. Most doctors try to regulate the pain and bleeding symptoms but birth control pills and other hormonal treatments do not affect this as it is NOT hormonally driven like endometriosis.

Adenomyosis is not life-threatening, unless you are hemorraging monthly. If you are able to control your pain and bleeding enough to function normally then hold off on the hysterectomy for a bit and do some careful research and soul searching because there is no turning back once you have had the surgery.

If you keep at least one healthy, functioning ovary you will not need to think about HRT. That ovary should remain functioning until you reach the age of natural menopuase - probably at least another 20 or 25 years for you.

The uterus has little to do with sexual pleasure. I have only one ovary remaining of my entire reproductive system and my husband and I enjoy frequent and highly pleasurable sex. With no worries of pregnancy we can be completely spontaneous and once complete healing has taken place there is no difference in sensation at all.

Complete healing - inside and out. Surgery=trauma. Things get moved around, jostled, etc., that are not meant to be so you may feel bruised inside. An LAVH method means you will have very small incisions in your lower abdomen that will heal rather quickly and you may have to remind yourself that you've just had major surgery. Allow at least 3 months to really feel 100% again. You will feel very drained and exhausted for several weeks both from the adenomyosis and the surgery.

I hope this helps you - good luck and google "adenomyosis" there are 43,400 hits to research!!

Been there and done that

At Fri, 12 Nov 2004, anonymous@obgyn.net wrote: >
>My doctor has determined that I have andomyosis, which I have never
>heard of till now. He recomends I have a parctial hystorectomy to
>removed my uterus. I am 30 years old and I am scaredof this for several
>reasons. I would like to hear from women who have had thier uterus
>removed.I want to know if it chanded your sex life any for you or your
>partner. Please help me make this decision.




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