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First time posting here..would love some support.From: Summer (anonymous@obgyn.net)Wed Nov 10 22:14:29 2004
I don't know how to begin, not really. It's a lot to say and I don't know what I'm looking for. Support and some answers for personal comforts on these matters. I am 21 years old, almost 22. I started my monthly cycle at what some would say a "young" age. I was 11, but, developed fast, so it wasn't too shocking. My monthly came with a lot of pain, but we figured, that was normal, lots of women have cramps. I usually took 2 aleve and 2 tylenol and then I was good to go for awhile. (I sincerely apologize if this goes on and on and on, it's not my purpose!) But after 3 years I started having "severe" pain. Enough to take darvocet, which my doctors prescribed. Then, each year, it progressed. By the time I was 16, my periods were consuming my months. I was missing school because the pain was immense. My gynocologist said that if it persisted that she would do a laproscopy for endometrosis and other problems because my pap smears, etc, were all coming back completely normal and I had no other symptoms. I had also been checked for any urinary problems and bowel problems..but all was completely normal. I also had several blood tests done for hormone levels...which many came back abnormal (some doctors said very abnormal, some said a little abnormal, some said normal) I always had sharp pains through the month and especially about the time I was about to ovulate, or when I was actually ovulating (or the counted day I was supposed to be.) I was now taking drugs like Vicoden and Vicoprofen for my pain. Which..wasn't a great feeling. At age 18 I had the laproscopy done for endometriosis, they found nothing. My pain continued to get worse and worse and worse. I am now 21 and I have seen 7 specialist, 5 different gynocologists, 2 endocronologist (sp?), and countless doctors have been involved. I have been diagnosed with PCOS and had a surgery for endometrosis, which they found plenty of and lasered off. I am on my 4th continous birth control bill to stop my period,(I have tried 5 other birth controls without continuing them, just like regular 3 weeks then placebo, but it didn't work) but it's not working. So now I'm on Ortho-Evra continuously and taking Synarel with it. I have had MRI's done that show a possibilty for adenomyosis ..and I have never been pregnant. It's apparently 90% more common to find adenmyosis after pregnancy.( I've never had any kind of sexual intercourse; waiting until marriage.) but that aside (which isn't important except many gynocologist didn't believe that I could be having severe pain only from monthlies with no sexual intercourse.)..so, that aside, I also have insomnia, severe hot flashes, night sweats, painful bloating before the periods, painful migranes, very moody and still..extremely painful periods. Another surgery..endometriosis found and lasered off and had 4 nerves cut by a specialist who said if the pain was coming from the direct center of the uterus I would have some relief. If it was from the sides, I probably wouldn't. They also carterized two very large cysts, one from each ovary, one being the size of a golf ball, the other the size slightly smaller than the golf ball. I now take demmoral for my periods..and just as of this month they've switched me to Endocet. My last period I took 8 Endocet in 30 hours. That's how long it took to get my pain under control. 6 are allowed every 24 hours for me. They also give me muscle relaxers and Darvon. This does help..eventually. For further back drug info I have had a gyno specialist that mixed certain drugs together in one capsul, muscle relaxant, pain killer, very very strong, it didn't work. I have a life to live...and I want to live it. I hate being on such strong drugs. It puts me on my back for at least 2 days. I have a very supportive family and wonderful friends and very supportive boyfriend...but in the end..I still want to attend all my 17 hours of class and hold a job that I don't miss 2 days a month for. I hate being on such strong medicine that I can't walk..and I really can't sleep either. People think they can sleep on drugs like that..and usually my pain is still so much that I can't. Anyway, thanks for reading..if you got through the whole thing!! :) And I'd love..some support..advice..anything. My doctors now are considering a hysterectemy; they haven't considered it in the past because I am "too young". That's all..thanks for reading, I truly appreciate it. I feel if I told this to people that don't fully know, they'd think I was insane.
-- Summer *
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