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Re: New here, chronic pelvic pain/endo in northern BC - very long sorry!

From: Ashli (anonymous@obgyn.net)
Sat Nov 6 20:04:33 2004


Have you tried Dr. Christina Williams in Vancouver? She's a reproductive endocrinologist, and excised my endo a year and a half ago. I know it would be a bit of a drive, but she would be well worth it. Good luck, and I hope you feel better! XOX, Ash t Fri, 5 Nov 2004, Shawna wrote: >
>Hi all! I've been reading through some of the other postings, and I know
>you will have heard my story dozens of time - or even lived it - so I
>would dearly love to pick your brains! I am a 24 year old mother of 2
>living in a small town in north central BC. I have dealt with heavy
>periods and painful cramps since I was 11, been on birth control pills,
>Vioxx -right before they took it off the market - and Ponstan, none of
>which helped. I had my tubes tied in July 2003, and also a "clean-up"
>of the endo present. Most of it was underneath my uterus and around the
>cervix. My doctor, who came highly recommended, told me then that he
>doubted I would have a problem with endo again. I knew better, and have
>never been back to him. Sure enough, May 2004 I started to have
>centralized, excrutiating pain around my right ovary, making moving
>difficult, and although my periods stayed regular at every 28-32 days,
>the bleeding was incredibly heavy. I went to the doc who put me on
>Vioxx and scheduled an ultrasound for three weeks later. By this time,
>it had been going on for almost 10 weeks when I had this sudden
>starburst of pain radiating throughout my abdomin, around my back and
>down my leg. The ultrasound was a couple days later and showed a normal
>uterus and no ovaries, so they scheduled a vaginal us for a couple of
>weeks later. The pain was nearly gone, a dull ache if I over did myself
>and my leg kept going numb, but other than that back to normal. So the
>vag us showed many numerous cysts on my ovaries, which the doc told me
>not to worry about. In oct I started to have pain like before during my
>period, as well as dizziness, nausea, and kind of a fading in and out of
>focus. It's also on both sides now. It is the second day of my nov
>period, and its worse than ever. I have an appointment for a new gyn -
>in Feb 2005. I was referred at my first appointment back in June. My
>mother - who has had endo for longer than I've been alive, and my mother
>in law, also with endo, and my sisters all think I should just go into
>the emergency, but I hate doing that. I guess I have just seen too many
>doctors who say either that it's stress, it's nothing - the ultrasounds
>were clear so surely I am imagining the pain (to which I want to kick
>this older gentleman in the nuts and say that he's imagining being in
>pain), or that it's endo and take some ibuprofen. It's so frusterating.
>I feel so impotent, I just want to scream and lay down in a ball and cry
>but I have a 1 and 3 year old to look after as well, so I can't! Sorry
>this is so long, but I really need to talk to people who understand.
>Thanks for listening, Shawna



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