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Re: Endometriosis, blood clots, and Coumidin (help?)
From: Amalia (anonymous@obgyn.net)
Sat Nov 6 14:21:42 2004
Have you had your protien levels check, S and C levels. I have protien
S defiency, which basically is a condition that you will form blood
clots. Anyone taking birth control should ask their doctor for this
simple blood test before its too late.
At Fri, 5 Nov 2004, anonymous wrote:
>
>CORRECTION: you MIGHT be able to use Tylenol - check with your doctor
>first. There are other methods of pain relief you can try as well such
>as a heating pad or hot water bottle, massage, topical rubs, etc.
>Anything that relaxes your muscles will help ease the cramps a bit....
>Not a cure but it will help.
>
>At Fri, 5 Nov 2004, anonymous wrote:
>>
>>At Fri, 5 Nov 2004, Lauren wrote:
>>>
>>>I have never had a laproscopy and am only
>>>symptomatically diagnosed with endometriosis, the long time that I was
>>>on birth control for treatment was more or less pain free and the birth
>>>control was a very effective treatment for my endometriosis (or whatever
>>>it was) pain. However, this summer I developed a blood clot in my head
>>>and was placed on Coumidin, a very common blood thinner. Doctors now
>>>refuse to put me back on the birth control, or any other hormone
>>>treatment including Lupron, the shot, or just plain Progestin, for
>>>management of my pelvic pain because of the slight risk for blood clots
>>>that these treatments entail.
>>
>>Lauren, for the majority of women the risk of blood clot is small - for
>>you it is more of a probability because you have had one therefore you
>>cannot use hormones because you are more likely to form another and
>>potentially fatal blood clot. Your doctor is 100% right.
>>
>>Also, because I am on Coumidin, I cannot
>>>take any anti-inflamatory pain killers or have any sort of surgery such
>>>as a laproscopy because of the risk of excessive bleeding. So, I have
>>>been told to "just live with it" but I can't really.
>
>>However, in this statement your doctor is not quite 100% correct. You
>>CAN have surgery but it must be carefully planned and you will have to
>>stop using the coumadin for a period of time prior to surgery and
>>immediately after. You can probably use tylenol but not aspirin or ibuprofen
>>because of the additional blood-thinning properties.
>
>> The doctors have
>>>told me my condition is very rare, because of the location of the blood
>>>clot and my age (19), and my poor luck at having endometriosis at the
>>>same time probably makes this situation even more unusual, but this
>>>seems like a pretty expansive site and I'm just hoping that maybe
>>>someone out there is either going through this as well, or knows more
>>>about it than my doctors all seem to. I've been to a gynocologist,
>>>neurologist, hematologist, and internal medicine physician...so I'll
>>>give this a shot too. Thanks :) I will try to check back at this site
>>>for updated responses, but feel free to email me if you have time:
>>>naya_day@yahoo.com
>>
>>There are blood clotting disorders that do affect young women. It is
>>extremely important that you become thoroughly educated on what your
>>particular disorder is because it will affect you for the rest of your
>>life. Some of these disorders are hereditary a thorough family medical
>>history is in order.
>>http://www.cdc.gov/ncbddd/hbd/women.htm and
>>http://www.cdc.gov/ncbddd/hbd/default.htm
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