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Re: Endometriosis, blood clots, and Coumidin (help?)
From: anonymous (anonymous@obgyn.net)
Fri Nov 5 17:28:14 2004
CORRECTION: you MIGHT be able to use Tylenol - check with your doctor
first. There are other methods of pain relief you can try as well such
as a heating pad or hot water bottle, massage, topical rubs, etc.
Anything that relaxes your muscles will help ease the cramps a bit....
Not a cure but it will help.
At Fri, 5 Nov 2004, anonymous wrote:
>
>At Fri, 5 Nov 2004, Lauren wrote:
>>
>>I have never had a laproscopy and am only
>>symptomatically diagnosed with endometriosis, the long time that I was
>>on birth control for treatment was more or less pain free and the birth
>>control was a very effective treatment for my endometriosis (or whatever
>>it was) pain. However, this summer I developed a blood clot in my head
>>and was placed on Coumidin, a very common blood thinner. Doctors now
>>refuse to put me back on the birth control, or any other hormone
>>treatment including Lupron, the shot, or just plain Progestin, for
>>management of my pelvic pain because of the slight risk for blood clots
>>that these treatments entail.
>
>Lauren, for the majority of women the risk of blood clot is small - for
>you it is more of a probability because you have had one therefore you
>cannot use hormones because you are more likely to form another and
>potentially fatal blood clot. Your doctor is 100% right.
>
>Also, because I am on Coumidin, I cannot
>>take any anti-inflamatory pain killers or have any sort of surgery such
>>as a laproscopy because of the risk of excessive bleeding. So, I have
>>been told to "just live with it" but I can't really.
>However, in this statement your doctor is not quite 100% correct. You
>CAN have surgery but it must be carefully planned and you will have to
>stop using the coumadin for a period of time prior to surgery and
>immediately after. You can probably use tylenol but not aspirin or ibuprofen
>because of the additional blood-thinning properties.
> The doctors have
>>told me my condition is very rare, because of the location of the blood
>>clot and my age (19), and my poor luck at having endometriosis at the
>>same time probably makes this situation even more unusual, but this
>>seems like a pretty expansive site and I'm just hoping that maybe
>>someone out there is either going through this as well, or knows more
>>about it than my doctors all seem to. I've been to a gynocologist,
>>neurologist, hematologist, and internal medicine physician...so I'll
>>give this a shot too. Thanks :) I will try to check back at this site
>>for updated responses, but feel free to email me if you have time:
>>naya_day@yahoo.com
>
>There are blood clotting disorders that do affect young women. It is
>extremely important that you become thoroughly educated on what your
>particular disorder is because it will affect you for the rest of your
>life. Some of these disorders are hereditary a thorough family medical
>history is in order.
>http://www.cdc.gov/ncbddd/hbd/women.htm and
>http://www.cdc.gov/ncbddd/hbd/default.htm
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