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Re: Continious Birth Control Question
From: Stacie (anonymous@obgyn.net)
Fri Oct 29 09:24:09 2004
Thank you so much for the info. I am definetly looking into another
doctor. I feel worse now than I did before my first lap. I hope you
feel better too.
At Fri, 29 Oct 2004, Ashli wrote:
>
>Excising the endo usually does work better, and really the only 100% way
>to know whether or not you have endo (biopsy sent to lab to confirm.)
>The only problem is that usually only endo specialists preform this. My
>Dr, who excised my endo put me on continuous BCP's too, but she said to
>take one every day until I start spotting, then go off for a week. That
>way, I only have to go off my pills two, maybe three times a year max.
>It makes a lot more sense to only have a period when you have to, rather
>than sucking it up every three months. Hope this helps and you're
>feeling better, XOX, Ash
>At Thu, 28 Oct 2004, Andrea wrote:
>>
>>Thanks for the info, I will go look it up! Also if you ever need me my
>>email address is amathews2423@charter.net. It was great talking with
>>you and please email if you need anything!
>>
>>At Thu, 28 Oct 2004, Stacie wrote:
>>>
>>>Andrea,
>>>Just look up under Endometriosis Association on the internet and you can
>>>contact them that way or there is a phone number. I became a member and
>>>recieved all kinds of books and the video. Plus they also give you a
>>>list of people that are close to your area for support you can contact
>>>as well as a list of doctors in that state that specialize in endo. I
>>>just don't have any them close to me. I will let you know how the
>>>vitamin thing goes. If you want you can also email me at
>>>SStacieMM@aol.com anytime if you have questions on the Endo Association.
>>>All procedes go to the research.
>>>
>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>
>>>>Stacie, I agree with you, these forums really help. YEah I would like
>>>>to get that video, can you tell me how to get a copy of that? It would
>>>>be great to watch. No, I have never tried to do Vitnams to help, or
>>>>ever heard of that, I am interested in learning though.
>>>>
>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>
>>>>>Thank you so much guys for the information. Maybe I will tell her to do
>>>>>the lap and then get a second opinion on the lazer or cutting. I am
>>>>>learning so much from everyone on the forums. We all just need to stick
>>>>>together. I will let you know how it goes at the doctor. I will ask
>>>>>her about the burning or cutting out of endo. That just seemed kind of
>>>>>interesting when I watched that video from endo research assoc. I might
>>>>>just give them a call too. I hope they find a cure to this thing for
>>>>>all of us. That video was really good. If you have family, you should
>>>>>check it out and have them watch. My parents didnt really understand
>>>>>how painful it was until watching it. Now mom is trying to get me all
>>>>>these vitamins to boost the immune system. Have any of you ever tried
>>>>>that route before?
>>>>>
>>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>>
>>>>>>Thanks Nikki for your response, it helps me so much to know that there
>>>>>>are other people like me out there. Yeah I did the Lupron 6 years ago
>>>>>>and the side effects were not fun. I will keep thinking about and
>>>>>>praying for you that they will get better. Thanks for all your support!
>>>>>>
>>>>>>At Thu, 28 Oct 2004, NIKKIE wrote:
>>>>>>>
>>>>>>>ANDREA, I HAVE LEARNED TO JUST LISTEN TO WHAT MY BODY IS TELLING ME. I
>>>>>>>KNOW WHEN I AM IN PAIN SOMETHING JUST ISN'T RIGHT. IF YOUR DOCTOR WANTS
>>>>>>>TO GIVE YOU ANOTHER LAP LET HIM. DOCTORS WON'T CUT YOU OPEN FOR NO
>>>>>>>REASON TODAY. IT IS SAD TO SAY BUT ALOT OF OUR GYNO'S ARE NOT
>>>>>>>SPECIALISTS WHEN IT COME TO ENDO. SO SOMETIMES I KNOW FOR ME I THINK IT
>>>>>>>IS MY HEAD. I AM ON LUPRON NOW AND TRYING TO GET THROUGH TH SIDE
>>>>>>>EFFECTS. BUT LET ME TELL YOU THERE ARE DAYS I CALL THE DOCTOR AND TELL
>>>>>>>HIM I WOO'T TAKE NO FOR AN ANSWER TAHT I WANT MY PAIN PILLS OR IT IS
>>>>>>>TIME FOR AN ULTASOUND OR SOMETHING. THIS IS MY MY WOMEN HOOD DON'T MESS
>>>>>>>AROUND WITH IT. I ALSO HAVE LESSION ON MY CERVIX HE GIVES ME A PAP
>>>>>>>SMEAR EVERY 4 MONTHS CAUSE I TEST POSTITIVE TO CANCER CELLS BUT BIOPSY
>>>>>>>ALWAYS COMES BACK NEGATIVE. SO YOU ARE THE PATIENT AND THE DOCTOR IS
>>>>>>>PROVIDING A SERVICE FOR YOU AND YOU TELL HIM. LET HIM HEAR YOU. LET ME
>>>>>>>KNOW HOW YOU MAKE OUT WITH YOUR LAP.
>>>>>>>NIKKIE
>>>>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>>>>
>>>>>>>>Nikki, thanks for your response, it makes me not feel so bad about
>>>>>>>>haveing me 3rd one in November. I keep thinking is this nesscarry, but
>>>>>>>>then again if you are experiecing this kind of pain than you should,
>>>>>>>>becuase noone should have the pain that us ladies have. It is just
>>>>>>>>scary to think about how bad it can get, and it sounds like you have had
>>>>>>>>it really bad.
>>>>>>>>
>>>>>>>>At Thu, 28 Oct 2004, NIKKIE wrote:
>>>>>>>>>
>>>>>>>>>DON'T EVER SAY TO SOON IS TO SOON. I HAD A LAP IN AUG 2003 AND HAD
>>>>>>>>>ANOTHER LAP MAR 2004. 6 MONTHS APART. BOTH TIMES ENDO WAS REMOVED IN
>>>>>>>>>THE SAME PLACES MY BLADDER AND BOWEL SACS. ALSO I WAS LOADED AGAIN WITH
>>>>>>>>>MY FIBROID CYSTS. I HAVE LEARNED ANYTHING IS POSSIBLE WITH ENDO.SAME
>>>>>>>>>HERE I HAVE ENDO IN MY BLADDER AND ON MY BLOOD VESSEL ON MY BLADDER
>>>>>>>>>WHICH THEY DID NOT REMOVE.THE VESSEL IS CONTRACTED O IHAVE BLLOD IN MY
>>>>>>>>>URINE. BUT I WON'T LET THEM TOUCH MY BLADDER ANYMORE. I AM TOO SCARED
>>>>>>>>>AT THIS POINT. YOU MIGHT NEED ANOTHER LAP. LISTEN TO YOUR BODY. DO
>>>>>>>>>NOT UNDER ESTIMATE WHAT YOUR BODY IS TELLING YOU. I HAVE LEARNED THAT
>>>>>>>>>THE HARD WAY. I HAVE HAD ALREDY LOST AN OVARIE AND A TUBE. I GO RIGHT
>>>>>>>>>TO THE DOCTOR NOW WHEN I KNOW SOMETHING IS NOT RIGHT. TALK TO YOUR
>>>>>>>>>DOCTOR AND MAKE HIM OR HER LISTEN.
>>>>>>>>>
>>>>>>>>>--
>>>>>>>>>NIKKIE
>>>>>>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>>>>>>
>>>>>>>>>>I had got a video from Endo Research and the doctor on there said if you
>>>>>>>>>>just burn it with laser surgery it won't get the roots of it all and he
>>>>>>>>>>said to make sure it is completely gone it needs to be cut out. I don't
>>>>>>>>>>know who to believe. I know there is one spot where she could not
>>>>>>>>>>remove it. It is by a major blood vessel and she didnt want to risk
>>>>>>>>>>rupturing it. I wonder if mine has spread to that area as well. I have
>>>>>>>>>>problems going to the bathroom and it takes awhile. I just feel
>>>>>>>>>>bloated. They have me on Tylenol #3 and 800 motrin. Do they have you
>>>>>>>>>>on anything for pain?
>>>>>>>>>>
>>>>>>>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>>>>>>>
>>>>>>>>>>>I know it is great to be able to talk to someone with the same problems.
>>>>>>>>>>>They lasered my out as well. I will tell you this, my first lab was
>>>>>>>>>>>over six years ago and I got on the Lupron right after surgey but still
>>>>>>>>>>>had lots of probelms. They decided to go back in only 4 months later to
>>>>>>>>>>>find that they did not get it all the first time and had found some in
>>>>>>>>>>>the colon area which they did not look there the first time. So it is
>>>>>>>>>>>possible that they might have left some behind on you, or did not find
>>>>>>>>>>>it all. If you are still having that bad of problems you might want to
>>>>>>>>>>>consider letting them go back in just to recheck everything.
>>>>>>>>>>>
>>>>>>>>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>>>>>>>>
>>>>>>>>>>>>Hi Andrea,
>>>>>>>>>>>>It is nice to know there are others that have the same problem. When
>>>>>>>>>>>>you had your lap did they burn them with a laser or cut it out? I had a
>>>>>>>>>>>>lap done in January. It just seems like it is too soon for it to come
>>>>>>>>>>>>back that quick. I also tried lupron for 2 months after surgery and had
>>>>>>>>>>>>to get off of it because it was affecting my thyroid.
>>>>>>>>>>>>
>>>>>>>>>>>>--
>>>>>>>>>>>>Stacie
>>>>>>>>>>>>
>>>>>>>>>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>>>>>>>>>
>>>>>>>>>>>>>Hi Stacie,
>>>>>>>>>>>>>
>>>>>>>>>>>>>I have been on continous BCP for a long time and I know exactly how you
>>>>>>>>>>>>>feel. I started this last year and I had a hard time starting my
>>>>>>>>>>>>>periods, I constantly feel bloated and sick to my stomach and I wonder
>>>>>>>>>>>>>if it is something with just me, but it is nice to know that someone out
>>>>>>>>>>>>>there feels the same way. I am undergoing my 3rd lab during November
>>>>>>>>>>>>>and I hope that helps with a lot of it, because the cramps and pains are
>>>>>>>>>>>>>just getting worse. Haev you ever had the surgery before?
>>>>>>>>>>>>>
>>>>>>>>>>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>>>>>>>>>>
>>>>>>>>>>>>>>Has anyone been on continious Bcp and had problems having there period
>>>>>>>>>>>>>>when the 3 months was up to have one. Did you have painful cramps,
>>>>>>>>>>>>>>bloating, feel blocked up and felt sick to your stomach? I don't know
>>>>>>>>>>>>>>whether to go back in and have a surgery or wait to get a 2nd opinion.
>>>>>>>>>>>>>>
>>>>>>>>>>>>>>Thanks Stacie
>>>>>>>>>>>>
>>>>>>>>>--
>>>>>>>>>NIKKIE
>>>>>>>>>
>>>>>>>--
>>>>>>>NIKKIE
>>>>>>>
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