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Re: Fist sized clots normal for endo?
From: Tracy (anonymous@obgyn.net)
Thu Oct 28 22:23:53 2004
Nikki,
I also have pain in my lower back. It feels so good when my husband
puts his palm there and pushes hard. It is similar to the back labor I
had when I was giving birth. I think a lap is a good idea. I had one
Oct 1st. It's not that bad. I had it on Friday and was going about my
usual routine by Monday. I was still a little sore then but just when I
moved certain ways or when I tried to wear blue jeans. One thing I want
to tell you is that right after my lap I felt great. I got my period
one week after surgery and I've had pains ever since. The doc said that
the endo is already growing back. He wanted to put me on lupron and I'm
going to refuse it. I'm going to look into getting a hysterectomy. I
don't want anymore children. I just have to find out where my endo was
located and if a hyst is the right choice for me. I think a lap is a
good place for you to start. One good thing is that my period wasn't
near as bad as it was before. Keep in mind that I've only had one since
surgery. It will be comming next week and I'm already in pain. I have
some pain killers that were prescribed after my surgery but I don't want
to take them unless I have too. I'm afraid of getting hooked on them.
Some questions you might want to ask after your lap are....What stage of
endo is it?....Where all was it located?....Were you able to get it all?
These are questions I wish I would of asked. Now I have to go back to
the gyno so I can ask them and also to inform him that I will not be
taking the lupron. You might be able to get some relief from your back
pain by lying on your back with a tennis ball under you. I do that when
it's really bad. Good luck with whatever you decide to do and remember
sometimes you need to make the doc listen!
Tracy
At Thu, 28 Oct 2004, Nikki wrote:
>
>Tracy,
>Yes, our situations definitely sound similar. I am the same way, with
>bleeding bad the first 2 days, and then virtually nothing. Then
>suddenly out of nowhere it's as if I started all over again, even with
>the terrible cramps I get when I first start -- they're always the
>worst! The doc. came highly recommended, and on my 1st visit, said he
>felt I had endo, and probably had it severe, judging from what I tell
>him I'm going through -- tailbone pain, mid-cycle pain, pain around the
>kidney area, getting sick, etc. It's pretty scary when you're fairly
>regular, well, regular for you, and then suddenly start bleeding like
>that. I prob. need to break down and go back to the doc. for a lap,
>my 1st appt. he said to consider having one. but my 2nd appt he was
>rushed, because he never said a word to my about my heavy bleeding,
>which is why i made the appt., he just did a routine pap. When reminded
>of the bleeding by his nurse, who was obviously concerned, he said to
>her (not me, to her) it's endo, she can deal with it, grabbed a pamphlet
>about endo, pointed to the symptoms, and said to me "See, these symtoms
>- (naming off the ones I had)it's endo." and he left the room, I haven't
>been back since, because of course, I felt like a was being a baby or a
>whiner. thanks for the advice
>Nikki
>
>At Tue, 26 Oct 2004, Tracy wrote:
>>
>>Hi Nikki,
>>
>>Your story sounds like mine right before I was diagnosed with endo. I
>>told the doc about my periods and he scheduled a lap. My periods came
>>at the regular time but they were like dropping a bomb the first 2 days
>>and then spotting. My previous gyno said it was just because of my age
>>(30). I explained this to my new doc and I told him that maybe it's
>>normal but not for me. The lap confirmed his speculation. You need to
>>see your doc and tell him this. I was diagnosed with endo but you need
>>to get checked out to rule out other problems. I also delt with the
>>cramping and pains but I knew it couldn't be normal to bleed like that.
>>I did have some large clots too. At first it reminded me of a
>>miscarriage but I knew I wasn't pregnant. See your doctor because if it
>>is serious you could be doing more harm by putting it off. I hope my
>>experience can help you.
>>Tracy
>>
>>At Tue, 26 Oct 2004, Nikki wrote:
>>>
>>>Hi, I am new to this, so forgive me if I ramble. I'm 28 and have had
>>>sever cramps for 12yrs. Nothing helps the pain. vicodin, tylenol 3,
>>>darviset, motri 800 - your name it, I've tried it.
>>>I've learned to cope with the cramping, but a few months ago, on the 3rd
>>>day of my period, I had sudden severe cramping and the immediately
>>>passed a fist sized blood clot. Then a couple months ago, on the 2nd
>>>day of my period I bled heavily, couldn't even use a tampon (sorry if to
>>>graphic) because as soon as I inserted it, it was already soaked though.
>>>Also every 10-15 mnutes I was passing large clots - about the size of 2
>>>finger held side by side, 1.5" wide by 3" tall. This lasted about
>>>12hrs. then tapered off to nothing. Being forced, I went to the doc.
>>>he said it's endo, you can deal with it. Ok, fine. Now this month, I
>>>started on the 16th, normal cycle. Well, on the 22nd, I started to spot
>>>I used a tampon within 10 minutes I bled through tampon. When taking
>>>tampon out I had that same large clot, then had some light spotting and
>>>then nothing.
>>>Also have severe ovultation pains since the 23rd. Don't remember having
>>>them for 4 days, usually only 2 or 3. Should I be concerned.
>>>Thanks for any advice anyone can give.
>>>Nikki
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