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Re: Continious Birth Control Question
From: Stacie (anonymous@obgyn.net)
Thu Oct 28 11:41:07 2004
Andrea,
Just look up under Endometriosis Association on the internet and you can
contact them that way or there is a phone number. I became a member and
recieved all kinds of books and the video. Plus they also give you a
list of people that are close to your area for support you can contact
as well as a list of doctors in that state that specialize in endo. I
just don't have any them close to me. I will let you know how the
vitamin thing goes. If you want you can also email me at
SStacieMM@aol.com anytime if you have questions on the Endo Association.
All procedes go to the research.
At Thu, 28 Oct 2004, Andrea wrote:
>
>Stacie, I agree with you, these forums really help. YEah I would like
>to get that video, can you tell me how to get a copy of that? It would
>be great to watch. No, I have never tried to do Vitnams to help, or
>ever heard of that, I am interested in learning though.
>
>At Thu, 28 Oct 2004, Stacie wrote:
>>
>>Thank you so much guys for the information. Maybe I will tell her to do
>>the lap and then get a second opinion on the lazer or cutting. I am
>>learning so much from everyone on the forums. We all just need to stick
>>together. I will let you know how it goes at the doctor. I will ask
>>her about the burning or cutting out of endo. That just seemed kind of
>>interesting when I watched that video from endo research assoc. I might
>>just give them a call too. I hope they find a cure to this thing for
>>all of us. That video was really good. If you have family, you should
>>check it out and have them watch. My parents didnt really understand
>>how painful it was until watching it. Now mom is trying to get me all
>>these vitamins to boost the immune system. Have any of you ever tried
>>that route before?
>>
>>At Thu, 28 Oct 2004, Andrea wrote:
>>>
>>>Thanks Nikki for your response, it helps me so much to know that there
>>>are other people like me out there. Yeah I did the Lupron 6 years ago
>>>and the side effects were not fun. I will keep thinking about and
>>>praying for you that they will get better. Thanks for all your support!
>>>
>>>At Thu, 28 Oct 2004, NIKKIE wrote:
>>>>
>>>>ANDREA, I HAVE LEARNED TO JUST LISTEN TO WHAT MY BODY IS TELLING ME. I
>>>>KNOW WHEN I AM IN PAIN SOMETHING JUST ISN'T RIGHT. IF YOUR DOCTOR WANTS
>>>>TO GIVE YOU ANOTHER LAP LET HIM. DOCTORS WON'T CUT YOU OPEN FOR NO
>>>>REASON TODAY. IT IS SAD TO SAY BUT ALOT OF OUR GYNO'S ARE NOT
>>>>SPECIALISTS WHEN IT COME TO ENDO. SO SOMETIMES I KNOW FOR ME I THINK IT
>>>>IS MY HEAD. I AM ON LUPRON NOW AND TRYING TO GET THROUGH TH SIDE
>>>>EFFECTS. BUT LET ME TELL YOU THERE ARE DAYS I CALL THE DOCTOR AND TELL
>>>>HIM I WOO'T TAKE NO FOR AN ANSWER TAHT I WANT MY PAIN PILLS OR IT IS
>>>>TIME FOR AN ULTASOUND OR SOMETHING. THIS IS MY MY WOMEN HOOD DON'T MESS
>>>>AROUND WITH IT. I ALSO HAVE LESSION ON MY CERVIX HE GIVES ME A PAP
>>>>SMEAR EVERY 4 MONTHS CAUSE I TEST POSTITIVE TO CANCER CELLS BUT BIOPSY
>>>>ALWAYS COMES BACK NEGATIVE. SO YOU ARE THE PATIENT AND THE DOCTOR IS
>>>>PROVIDING A SERVICE FOR YOU AND YOU TELL HIM. LET HIM HEAR YOU. LET ME
>>>>KNOW HOW YOU MAKE OUT WITH YOUR LAP.
>>>>NIKKIE
>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>
>>>>>Nikki, thanks for your response, it makes me not feel so bad about
>>>>>haveing me 3rd one in November. I keep thinking is this nesscarry, but
>>>>>then again if you are experiecing this kind of pain than you should,
>>>>>becuase noone should have the pain that us ladies have. It is just
>>>>>scary to think about how bad it can get, and it sounds like you have had
>>>>>it really bad.
>>>>>
>>>>>At Thu, 28 Oct 2004, NIKKIE wrote:
>>>>>>
>>>>>>DON'T EVER SAY TO SOON IS TO SOON. I HAD A LAP IN AUG 2003 AND HAD
>>>>>>ANOTHER LAP MAR 2004. 6 MONTHS APART. BOTH TIMES ENDO WAS REMOVED IN
>>>>>>THE SAME PLACES MY BLADDER AND BOWEL SACS. ALSO I WAS LOADED AGAIN WITH
>>>>>>MY FIBROID CYSTS. I HAVE LEARNED ANYTHING IS POSSIBLE WITH ENDO.SAME
>>>>>>HERE I HAVE ENDO IN MY BLADDER AND ON MY BLOOD VESSEL ON MY BLADDER
>>>>>>WHICH THEY DID NOT REMOVE.THE VESSEL IS CONTRACTED O IHAVE BLLOD IN MY
>>>>>>URINE. BUT I WON'T LET THEM TOUCH MY BLADDER ANYMORE. I AM TOO SCARED
>>>>>>AT THIS POINT. YOU MIGHT NEED ANOTHER LAP. LISTEN TO YOUR BODY. DO
>>>>>>NOT UNDER ESTIMATE WHAT YOUR BODY IS TELLING YOU. I HAVE LEARNED THAT
>>>>>>THE HARD WAY. I HAVE HAD ALREDY LOST AN OVARIE AND A TUBE. I GO RIGHT
>>>>>>TO THE DOCTOR NOW WHEN I KNOW SOMETHING IS NOT RIGHT. TALK TO YOUR
>>>>>>DOCTOR AND MAKE HIM OR HER LISTEN.
>>>>>>
>>>>>>--
>>>>>>NIKKIE
>>>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>>>
>>>>>>>I had got a video from Endo Research and the doctor on there said if you
>>>>>>>just burn it with laser surgery it won't get the roots of it all and he
>>>>>>>said to make sure it is completely gone it needs to be cut out. I don't
>>>>>>>know who to believe. I know there is one spot where she could not
>>>>>>>remove it. It is by a major blood vessel and she didnt want to risk
>>>>>>>rupturing it. I wonder if mine has spread to that area as well. I have
>>>>>>>problems going to the bathroom and it takes awhile. I just feel
>>>>>>>bloated. They have me on Tylenol #3 and 800 motrin. Do they have you
>>>>>>>on anything for pain?
>>>>>>>
>>>>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>>>>
>>>>>>>>I know it is great to be able to talk to someone with the same problems.
>>>>>>>>They lasered my out as well. I will tell you this, my first lab was
>>>>>>>>over six years ago and I got on the Lupron right after surgey but still
>>>>>>>>had lots of probelms. They decided to go back in only 4 months later to
>>>>>>>>find that they did not get it all the first time and had found some in
>>>>>>>>the colon area which they did not look there the first time. So it is
>>>>>>>>possible that they might have left some behind on you, or did not find
>>>>>>>>it all. If you are still having that bad of problems you might want to
>>>>>>>>consider letting them go back in just to recheck everything.
>>>>>>>>
>>>>>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>>>>>
>>>>>>>>>Hi Andrea,
>>>>>>>>>It is nice to know there are others that have the same problem. When
>>>>>>>>>you had your lap did they burn them with a laser or cut it out? I had a
>>>>>>>>>lap done in January. It just seems like it is too soon for it to come
>>>>>>>>>back that quick. I also tried lupron for 2 months after surgery and had
>>>>>>>>>to get off of it because it was affecting my thyroid.
>>>>>>>>>
>>>>>>>>>--
>>>>>>>>>Stacie
>>>>>>>>>
>>>>>>>>>At Thu, 28 Oct 2004, Andrea wrote:
>>>>>>>>>>
>>>>>>>>>>Hi Stacie,
>>>>>>>>>>
>>>>>>>>>>I have been on continous BCP for a long time and I know exactly how you
>>>>>>>>>>feel. I started this last year and I had a hard time starting my
>>>>>>>>>>periods, I constantly feel bloated and sick to my stomach and I wonder
>>>>>>>>>>if it is something with just me, but it is nice to know that someone out
>>>>>>>>>>there feels the same way. I am undergoing my 3rd lab during November
>>>>>>>>>>and I hope that helps with a lot of it, because the cramps and pains are
>>>>>>>>>>just getting worse. Haev you ever had the surgery before?
>>>>>>>>>>
>>>>>>>>>>At Thu, 28 Oct 2004, Stacie wrote:
>>>>>>>>>>>
>>>>>>>>>>>Has anyone been on continious Bcp and had problems having there period
>>>>>>>>>>>when the 3 months was up to have one. Did you have painful cramps,
>>>>>>>>>>>bloating, feel blocked up and felt sick to your stomach? I don't know
>>>>>>>>>>>whether to go back in and have a surgery or wait to get a 2nd opinion.
>>>>>>>>>>>
>>>>>>>>>>>Thanks Stacie
>>>>>>>>>
>>>>>>--
>>>>>>NIKKIE
>>>>>>
>>>>--
>>>>NIKKIE
>>>>
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