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Re: Just looking for someone to talk to with the same problems...
From: Andrea (anonymous@obgyn.net)
Tue Oct 26 16:24:34 2004
Mandy, I totally know how you feel, I think I feel the same way right
now and I feel like I am in the worse mood, however talking to you about
it somehow makes me feel better and I hope that we all help you feel the
same. I wish I could refer a doctor to you, but I live in Birmingham,
AL and that is a little far for you to come to the Doctor. I will keep
you in my prayers and pray that you come to some kind of resolution and
get some relief, but do remember with Endo the only releif is the lab
and it can always come back. Also I do not know how old you are or if
you are married, but I have heard that having a child can sometimes help
the sitution, not always but sometimes. So if you are married and
thinking about kids it might be a good idea to have the lab and then try
to have a baby following. That is just a suggestion, again I do not
know your age and you life. I was in your boat 6 years ago and I was
only 17, it is something really hard to go throught and now that I am
facing another surgery it is just as hard. Believe me it gets better.
What to expect, the surgery is an outpatient so you will not be in the
hospital over night. You will go in that morning and they will jsut put
you to sleep and you will wake up either 1-3 hours later depending upon
what they find. Please note the recovery room is always cold, so ask
for more blankets. You will be uncomfortable for a while and then they
will release you to a room, where you will spend a couple of hours to
monitor you and make sure you are okay. They will then send you on your
way (you CANNOT drive or will not want to drive you will sleep on the
way home) You might have discomfort due to the gas they have to inflate
your stomach with, sometimes it gets lose. You will be extremely week
and tired for a couple of days and think that you wll never get better,
but believe me you will. Then you will start to get some energy back
and get back to normal. Typical if you have your surgery on a Wednesday
or Thursday you will be able to go back to work that next Monday
usually. They will make four incensions, one at the belly button, and
three very low. You will not be able to see these in time they will
start to vanish, I have to point the to people so they can see them so
that is a good thing. I think this covers it, let me know if you need
anything else!! Good luck finding a doctor!
At Tue, 26 Oct 2004, Mandy wrote:
>
>Andrea,
>I am hoping that I can find a Dr. for a second opinion that will do the
>surgery. I don't want to at all, but I know that it is probably the
>only way. I know that my current doctor wants to avoid surgery for
>whatever reasons, but I am very frustrated with the pill right now.
>Today, happens to be a bad day physically and I am frustrated with
>everything. I am so sick of tired of feeling like this and going
>through this. I am sick of being medicated, but not treated. Every
>gyno that I have seen has just used the pill as a solution and I want a
>cure, and by that I mean, I want something done to resolve the situation
>as best as possible, not mask it. I don't mean to whine, but I just
>feel so terrible today and all I want to do right now and go home, curl
>up in bed with my Nip/Tuck 1st season, eat chocolate, and lie there!
>Instead, I have to work nine hours and I work with all men who think
>that it is all just being a "whiny woman on the rag".
>
>If anyone is from the Pittsburgh, PA or Wheeling, WV area and can
>recommend a good Dr. that will do for me what I need, I could use the
>info. Also I have read alot on the lap lately and if you Andrea, or
>anyone can give me a little insight onto what to expect, I think I would
>feel more ready to take the pluge!
>
>Thank you so much for your support and I'll be thinking of you as you
>brace for your surgery!
>
>Love,
>mandy
>At Tue, 26 Oct 2004, Andrea wrote:
>>
>>I have been reading this thread and it sounds like Mandy, you really
>>need to have the Lap done to really find out what is going on. To tell
>>you a little about my story, I had my first lap over 6 years ago, they
>>did try the pills first but they did not help me any. I then had my
>>first lap and was put on Lupron immedialty following (this is the only
>>thing I am unsure of) I was still have problems so a couple of months
>>later they did my second surgery. I felt so much better after they
>>cleared it all up. Well for the past 2 years I have been having
>>problems again and this past month was really bad. I am having my 3rd
>>lap done the week of Thanksgiving (what a bad week to do it, I just hope
>>it helps.
>>
>>After all of that, I know that you do not want to have the lap, but
>>think of it like this, if you keep putting it off, you may end up a lot
>>worse than things are now and if you do want kids one day then you need
>>to get in there and see what is going on. I have also been on Ovcon and
>>it worked better but the truth of the matter is, if you have Endo, then
>>the pills are not going to help at all and it is better to find out and
>>do something about it then to live with the pain.
>>
>>I know this is a really hard subject and talking to you about it helps
>>me believe it or not, I am really emotional about having this next
>>surgery, but I know that it is the only way that the pain will go away.
>>I will keep you in my prayers and please let me know if you need
>>anything. I know you feel as though you are never going to get better,
>>but the surgery does help!
>>
>>At Tue, 26 Oct 2004, Mandy wrote:
>>>
>>>Tracy,
>>>My doctor told me that he wants to try to regulate the symptoms, pains,
>>>and periods with birth control first because his group trys to avoid
>>>surgery if at all possible. He said that it can be more damaging in
>>>some cases. I am not having a good experience with the pills though. I
>>>was suppose to take the pills for 6 months and I was not feeling better,
>>>then they were going to do that lap. I could not take the first pill at
>>>all, so now we are switching to Ovcon. I have to take that for 2 months
>>>and if there is no progress or if I get miserable on that one as well,
>>>we are moving the lap up to that time. Depending on the results, we
>>>will then start the Lupron. I have been reading the info on that med
>>>and it doesn't sound great, so I am hoping that this pill will get my
>>>pain to the point where it is tolerable.
>>>
>>>Yes, I would like to know for sure, but on the other hand, it scares me
>>>to death. I know this is going to sound horrible, but I would rather
>>>have endo than ovarian cancer. Part of me would rather just go with his
>>>judgment and leave it alone, but you are totally right. It would be
>>>best to know, but he seems to think that the pill is going to help me(I
>>>am looking for another DR. to get a 2nd opinion). When I was 18, I
>>>went to the gyno and I told her all of my problems. She stuck me on the
>>>pill. Here I am 5 years later, 10x worse off, so I am going to get a
>>>2nd.
>>>
>>>Thank you for your hopes and prayers.
>>>
>>>--
>>>Mandy
>>>At Mon, 25 Oct 2004, Tracy wrote:
>>>>
>>>>Hi Mandy, I was just wondering why you didn't have a lap done? This is
>>>>the only way to know if you have endo. It sounds like you do have it
>>>>but wouldn't you want to know for sure? I don't mean to sound rude, but
>>>>that way you can rule out any other problems. Hopefully, you don't have
>>>>endo and instead you have a problem that can be fixed. I wouldn't wish
>>>>endo on anyone. This would also inform the doctor as to wether your
>>>>medication is necessary or not. I'm just praying that you don't have it
>>>>because the choices as to what to do are severely limited. Good luck
>>>>and take care.
>>>>Tracy
>>>>
>>>>At Mon, 25 Oct 2004, Mandy wrote:
>>>>>
>>>>>Hello everyone. My name is Mandy and I am 23 years old. Last month, I
>>>>>was told that I have endometriosis based on my symptoms and menstrual
>>>>>history. My doctor put me on Yasmin, but I am not having a good
>>>>>reaction to it at all, so I finished the pack and I am taking a break
>>>>>until I can see him again. I have been doing a lot of reading on all of
>>>>>the procedures and medications to treat this disease and to be honest,
>>>>>it scares me. When I was a freshman in college, I gave up my hopes of
>>>>>becoming a lawyer because I realized that having family was more
>>>>>important. Now I don't know if that is possible.
>>>>>
>>>>>I think that it would make me feel a little better to talk to other
>>>>>women out there that have gone through the same thing that I am; the
>>>>>fear, confusion, the pain! My mom is the type of person who is just not
>>>>>understanding or sympathetic, so I have not really had any females that
>>>>>I am close to talk to about this.
>>>>>
>>>>>I read a little about the ribbons and I think that is a great idea! I'm
>>>>>so happy to see that there is a group of women that I can talk to about
>>>>>and relate to.
>>>>>
>>>>>Love,
>>>>>
>>>>>--
>>>>>Mandy
>>>>>
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