Re: Just looking for someone to talk to with the same problems...
From: Andrea (anonymous@obgyn.net)
Tue Oct 26 11:13:30 2004
I have been reading this thread and it sounds like Mandy, you really
need to have the Lap done to really find out what is going on. To tell
you a little about my story, I had my first lap over 6 years ago, they
did try the pills first but they did not help me any. I then had my
first lap and was put on Lupron immedialty following (this is the only
thing I am unsure of) I was still have problems so a couple of months
later they did my second surgery. I felt so much better after they
cleared it all up. Well for the past 2 years I have been having
problems again and this past month was really bad. I am having my 3rd
lap done the week of Thanksgiving (what a bad week to do it, I just hope
it helps.
After all of that, I know that you do not want to have the lap, but
think of it like this, if you keep putting it off, you may end up a lot
worse than things are now and if you do want kids one day then you need
to get in there and see what is going on. I have also been on Ovcon and
it worked better but the truth of the matter is, if you have Endo, then
the pills are not going to help at all and it is better to find out and
do something about it then to live with the pain.
I know this is a really hard subject and talking to you about it helps
me believe it or not, I am really emotional about having this next
surgery, but I know that it is the only way that the pain will go away.
I will keep you in my prayers and please let me know if you need
anything. I know you feel as though you are never going to get better,
but the surgery does help!
At Tue, 26 Oct 2004, Mandy wrote:
>
>Tracy,
>My doctor told me that he wants to try to regulate the symptoms, pains,
>and periods with birth control first because his group trys to avoid
>surgery if at all possible. He said that it can be more damaging in
>some cases. I am not having a good experience with the pills though. I
>was suppose to take the pills for 6 months and I was not feeling better,
>then they were going to do that lap. I could not take the first pill at
>all, so now we are switching to Ovcon. I have to take that for 2 months
>and if there is no progress or if I get miserable on that one as well,
>we are moving the lap up to that time. Depending on the results, we
>will then start the Lupron. I have been reading the info on that med
>and it doesn't sound great, so I am hoping that this pill will get my
>pain to the point where it is tolerable.
>
>Yes, I would like to know for sure, but on the other hand, it scares me
>to death. I know this is going to sound horrible, but I would rather
>have endo than ovarian cancer. Part of me would rather just go with his
>judgment and leave it alone, but you are totally right. It would be
>best to know, but he seems to think that the pill is going to help me(I
>am looking for another DR. to get a 2nd opinion). When I was 18, I
>went to the gyno and I told her all of my problems. She stuck me on the
>pill. Here I am 5 years later, 10x worse off, so I am going to get a
>2nd.
>
>Thank you for your hopes and prayers.
>
>--
>Mandy
>At Mon, 25 Oct 2004, Tracy wrote:
>>
>>Hi Mandy, I was just wondering why you didn't have a lap done? This is
>>the only way to know if you have endo. It sounds like you do have it
>>but wouldn't you want to know for sure? I don't mean to sound rude, but
>>that way you can rule out any other problems. Hopefully, you don't have
>>endo and instead you have a problem that can be fixed. I wouldn't wish
>>endo on anyone. This would also inform the doctor as to wether your
>>medication is necessary or not. I'm just praying that you don't have it
>>because the choices as to what to do are severely limited. Good luck
>>and take care.
>>Tracy
>>
>>At Mon, 25 Oct 2004, Mandy wrote:
>>>
>>>Hello everyone. My name is Mandy and I am 23 years old. Last month, I
>>>was told that I have endometriosis based on my symptoms and menstrual
>>>history. My doctor put me on Yasmin, but I am not having a good
>>>reaction to it at all, so I finished the pack and I am taking a break
>>>until I can see him again. I have been doing a lot of reading on all of
>>>the procedures and medications to treat this disease and to be honest,
>>>it scares me. When I was a freshman in college, I gave up my hopes of
>>>becoming a lawyer because I realized that having family was more
>>>important. Now I don't know if that is possible.
>>>
>>>I think that it would make me feel a little better to talk to other
>>>women out there that have gone through the same thing that I am; the
>>>fear, confusion, the pain! My mom is the type of person who is just not
>>>understanding or sympathetic, so I have not really had any females that
>>>I am close to talk to about this.
>>>
>>>I read a little about the ribbons and I think that is a great idea! I'm
>>>so happy to see that there is a group of women that I can talk to about
>>>and relate to.
>>>
>>>Love,
>>>
>>>--
>>>Mandy
>>>
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