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uplifting....From: Amber (anonymous@obgyn.net)Thu Oct 14 15:48:34 2004
Hi everyone... I have never posted on this forum...but I always read it. I really appreciate everyone's openness. I think one of the most important things we can do for each other is share our experiences. This affords us several things - the opportunity to talk about what is going on with our bodies and to sort them out in our minds - and it allows us to hopefully be of benefit to others. When I read these posts I am strengthened, uplifted and fortified. Knowing that I am not alone in my feelings and pain helps me. It does not make me happy that others feel bad - and I don't wish this on anyone. Thank you to everyone who contributes...I appreciate it. My name is Amber. I am 26 years old. I have always had problems with my period. Hot flashes, nausea, vomiting, diarrhea, fainting, and hot and cold sweats. My periods have always put me out of commission. My mother had a hysterectomy when she was 38 because of her endometriosis. I remember as a child finding her crumbled up in a little ball in the bottom of a shower writhing in pain. My husband and I have been married for 7 years. We have a beautiful little girl (almost 2). It took us five years to make her - lots of fertility drugs and endometriosis management. My symptoms came back three months after having her (the same amount of time after my laparoscopy). My symptoms have only increased. I fear the day she finds me on the floor of the shower. I fear the day I find her there. The day I gave birth to her my heart soared with joy, but also sadness...because I knew the pain she might have to endure later in life due to endometriosis. Sometimes I feel so helpless. Sometimes I know I can do something to improve this situation. I need to do something to help find a cure. I don't want my precious little girl to hurt the way I do...the way my mother did. So, I am doing several things. First, I read your stories. Second, I keep track of my own problems so that later they can find some correlation with my body - and my mother's - and my daughters. Third, I am writing here. Fourth, I am trying to volunteer wherever possible to assist Endometriosis research. Fifth, I am trying to get into a position where people will listen to my message. So many people have no idea what endometriosis is and I feel the responsibility to get it out there. The first step to change and assistance is to let people know that it exists. I am currently Mrs. Beaumont America and will be running for Mrs. Texas America in June. I am working on securing my platform at the moment by partnering with a foundation. I have decided to champion something near and dear to me - endometriosis. Of course I always need sponsors, but there is a free way to help me. I would like to put together a book with people's thoughts, stories, feelings about endometriosis. If you would like to contribute, please let me know. You can e-mail me at amberdlanning@msn.com or by mailing it to Amber Lanning 3065 Willow Place Unit A, Beaumont, TX 77707 I will not use anything unless you send it to this e-mail or mail address (meaning I won't just go online, copy peoples stories and use them.) Once I accumulate people's material I will put them in a notebook for people to browse through (so if you want it to be anonymous, let me know - or just use your first name) when they visit the booth that I plan on setting up wherever I make appearances. This is so important to me. My body is falling apart right now - and I need to know that I am doing all that I can. Please help me by sharing your stories so that together we can raise awareness. Thank you so much.
-- Amber Lanning
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