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Re: Luperon: Dangerous Side Effects???From: Pam (anonymous@obgyn.net)Mon Oct 4 18:16:46 2004
At Sun, 3 Oct 2004, anonymous@obgyn.net wrote: > >At Fri, 1 Oct 2004, Amy wrote: >> >>My doctor wants to start me on Lupron, but I terrified of it. I've >>heard it can cause terrible depression and mood swings and I already >>have been diagnosed with having bi-polar disorder (long history of >>depression, mood swings, etc...). >> >>Seems like there has to be a better way for me??? >> >>At Thu, 30 Sep 2004, Amy wrote: >>> >>>Emily, >>> >>>I just want to share my experience, since you asked for advice. I am on >>>my second time of Lupron and for me, I have not seemed to experience any >>>long term side effects from it. (thank goodness!) I did the first >>>course in 2001 and just started the second one a couple months ago. I >>>do have the hot flashes and some night sweats, and an occasional mood >>>swing, but nothing too hard to handle. I get so much relief from the >>>Lupron (my pain goes away completely and the first time kept me pain >>>free for over a year) that the trade-off of hot flashes, etc. is worth >>>it. I do not gain weight either, I actually lose about 7-10 pounds. My >>>bloated belly was gone within 3 weeks of starting this last round. I >>>think my bcps make me retain a lot of water though, so maybe I lose it >>>so quickly because I am not taking my pills when on the shot. The first >>>time, my side effects went away after a month or two of stopping the >>>injections, but the bloated belly came back when I restarted my birth >>>control. >>> >>>I DO believe many women have experienced long term side effects though. >>>I have read too much to think it cannot happen. It really does break my >>>heart to read some of the stories women have gone through after taking >>>it, and I count myself lucky to not have had it happen to me. Everyone >>>reacts differently so it is hard to make a decision. I struggled with >>>the decision for almost 3 years before giving in because I felt I had no >>>other option. I would just continue to do your research and decide what >>>you think is best for yourself. You can search the archives on the >>>forum and find lots of posts on Lupron, some good, some bad. >>> >>>Good luck and hang in there! >>>Amy Meyer >>> >>>At Wed, 29 Sep 2004, Emily wrote: >>>> >>>>I was given my first shot of Lupron Sept. 17th. I asked the Dr. about >>>>the side effects and he gave me the normal hot flashes, night sweats, >>>>etc. I had heard of many people with endo that have taken Lupron, so I >>>>told my Dr. that I would give it a try. When I got home from the >>>>appointment I did some research on Lupron and found many websites where >>>>women are warning others of the long term side effects of Lupron. Their >>>>"side effects" included seizures, cardiac problems, fibromyalgia, severe >>>>bone loss, bad bruising, migraines, insomnia, joint pain, short term >>>>memory loss, m.s., arthritis, stroke, vision damage, jaw pain, epilepsy, >>>>and more. >>>>This scared me and I am wanting to know if these side effects are really >>>>from Lupron. I know that these women think so , but maybe the would >>>>have had these problems anyway? I don't know. No studies have been done >>>>on the long term side effects of Lupron. There is a petition for the >>>>FDA to do a study on long term side effects. >>>>I am scared to get another shot and thinking of not getting the second >>>>shot, but I am feeling some pain relief from the Lupron. I am also >>>>having hot flashes, night sweats, migraines (every day), nausea, sore >>>>muscles, sore joints, and bone pain. I have heard that the side effects >>>>will increase with the second shot. >>>>what have you experienced and what are your thoughts about long term >>>>effects??? >>>> >>>>Thanks for any feedback and/or advice and personal experiences. :) >>>> >>>>-- >>>>Emily >>>> >>-- >>Amy >> >I am also on my second round of Lupron. I had the same hot flashes and >night sweats. A little weight gain 10 pounds This time. The first time >I had the shot (10 years ago) i didn't have any side effects. I think I >was too young (16 years old). The first time it worked like a charm and >everything went away. This time it didn't. I have to go back to Dr and >discuss what is next. He thinks it is time to have kids. I am 27 now >but don't know if my husband is really ready. >Nadine
-- Hi amy, I can understand your concerns about Lupron, you do have really bad mood swings on this medicine, but you might be one that doesn't and I really don't think I would chance it seeing as you are bipolar. I have taken it for 20months all together and I feel worse then I did before taking this crap. All we are is ginypigs for this drug, thats why they never tell you everything that your going to feel on this drug, If I had it to do over I would have never said ok I'll try it. What I don't really understand is why this disease has never been on opra or any other channels, I think maybe we should write and ask her to have this topic on her show so woman will know what this disease is doing to us and also talk about lupron Depo to because had I known about this drug ahead of time I could have made a decision not to take it. You know we need to stick up for each other here because no one else will. Hell the DR.s don't give a crap about what were going thrue. My advice to you is do not take it. I wish you the best, let us know how your doin. God Bless you.
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