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Re: Luperon: Dangerous Side Effects???From: anonymous@obgyn.netSun Oct 3 20:57:50 2004
At Fri, 1 Oct 2004, Amy wrote: > >My doctor wants to start me on Lupron, but I terrified of it. I've >heard it can cause terrible depression and mood swings and I already >have been diagnosed with having bi-polar disorder (long history of >depression, mood swings, etc...). > >Seems like there has to be a better way for me??? > >At Thu, 30 Sep 2004, Amy wrote: >> >>Emily, >> >>I just want to share my experience, since you asked for advice. I am on >>my second time of Lupron and for me, I have not seemed to experience any >>long term side effects from it. (thank goodness!) I did the first >>course in 2001 and just started the second one a couple months ago. I >>do have the hot flashes and some night sweats, and an occasional mood >>swing, but nothing too hard to handle. I get so much relief from the >>Lupron (my pain goes away completely and the first time kept me pain >>free for over a year) that the trade-off of hot flashes, etc. is worth >>it. I do not gain weight either, I actually lose about 7-10 pounds. My >>bloated belly was gone within 3 weeks of starting this last round. I >>think my bcps make me retain a lot of water though, so maybe I lose it >>so quickly because I am not taking my pills when on the shot. The first >>time, my side effects went away after a month or two of stopping the >>injections, but the bloated belly came back when I restarted my birth >>control. >> >>I DO believe many women have experienced long term side effects though. >>I have read too much to think it cannot happen. It really does break my >>heart to read some of the stories women have gone through after taking >>it, and I count myself lucky to not have had it happen to me. Everyone >>reacts differently so it is hard to make a decision. I struggled with >>the decision for almost 3 years before giving in because I felt I had no >>other option. I would just continue to do your research and decide what >>you think is best for yourself. You can search the archives on the >>forum and find lots of posts on Lupron, some good, some bad. >> >>Good luck and hang in there! >>Amy Meyer >> >>At Wed, 29 Sep 2004, Emily wrote: >>> >>>I was given my first shot of Lupron Sept. 17th. I asked the Dr. about >>>the side effects and he gave me the normal hot flashes, night sweats, >>>etc. I had heard of many people with endo that have taken Lupron, so I >>>told my Dr. that I would give it a try. When I got home from the >>>appointment I did some research on Lupron and found many websites where >>>women are warning others of the long term side effects of Lupron. Their >>>"side effects" included seizures, cardiac problems, fibromyalgia, severe >>>bone loss, bad bruising, migraines, insomnia, joint pain, short term >>>memory loss, m.s., arthritis, stroke, vision damage, jaw pain, epilepsy, >>>and more. >>>This scared me and I am wanting to know if these side effects are really >>>from Lupron. I know that these women think so , but maybe the would >>>have had these problems anyway? I don't know. No studies have been done >>>on the long term side effects of Lupron. There is a petition for the >>>FDA to do a study on long term side effects. >>>I am scared to get another shot and thinking of not getting the second >>>shot, but I am feeling some pain relief from the Lupron. I am also >>>having hot flashes, night sweats, migraines (every day), nausea, sore >>>muscles, sore joints, and bone pain. I have heard that the side effects >>>will increase with the second shot. >>>what have you experienced and what are your thoughts about long term >>>effects??? >>> >>>Thanks for any feedback and/or advice and personal experiences. :) >>> >>>-- >>>Emily >>> >-- >Amy > I am also on my second round of Lupron. I had the same hot flashes and night sweats. A little weight gain 10 pounds This time. The first time I had the shot (10 years ago) i didn't have any side effects. I think I was too young (16 years old). The first time it worked like a charm and everything went away. This time it didn't. I have to go back to Dr and discuss what is next. He thinks it is time to have kids. I am 27 now but don't know if my husband is really ready. Nadine
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