ENDO Messages for October, 2004: Re: bowel endo-to Kim

Re: bowel endo-to Kim

From: Amy (anonymous@obgyn.net)
Fri Oct 1 16:38:07 2004

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Kim,

I have endo on my bowels and have the following symptoms: loose stools all the time, diarrhea when on my period. Lots of pressure and pain in my rectal area, especially after sitting for a long time. Bleeding from my vagina when I strain to have a bowel movement, heavy "gushing" of blood sometimes after sitting for hours or riding in the car. My bowel and my uterus are always stuck together from scar tissue and when they are freed up during lap, all these symptoms go away for awhile.

I was considering hysto this year (held off and went for another lap and Lupron instead) and my OB/GYN also insisted I have a colonoscopy to rule out problems inside my bowel. I went through the colonoscopy in late December and nothing was wrong. I then decided in about May to hold off on hysto for now, but at least the colonoscpy gave me peace of mind and let me know my bowel issues are definitely endo related.

The colonoscopy is no big deal at all. The prep part of taking the laxatives is the worst part. The procedure is outpatient and mine was done in the actual Doctor's office. I was there for about a total of 3 hours. They put me in "twilight" so I was not completely under, but did not know what was going on, nor remember any of it. I did not have any pain when it was over. (I was afraid my butt would be sore). Slept the rest of the day away when I got home and was starving for food when I woke up. I was terrified of having it done and then when it was over, realized it was not the big deal I thought it would be. I was back to normal and at work the next day. Just felt dopey and kind of out of it for about 24 hours after the procedure, from the drugs they gave me.

Hope this helps! Feel free to email me direct if you want.

Hang in there and good luck! Amy Meyer

At Fri, 1 Oct 2004, Kim wrote: >
>Hi... I really hate to do this because I know you were looking for
>answers and I am asking more questions-but I'm really needing info from
>someone who is dealing with endo and has bowel issues! I have had endo
>for 7 years and am finally at the end of the road and scheduling a hyst.
>for december- tried countless BCP's, laparoscopy sx's, lupron, pain
>medication, diet alterations...even meds like tegretol to see about
>stopping the nerve activity. Anyways... because my gyn wanted to be
>1000% sure before the hyst. he schedules a colonoscopy next month to
>eliminate any other possible sources of pain. He has to rule out
>inflammatory bowel disease vs. endo of bowel. In the laps my bowel
>looked fine? I have absolutely no bowel symptoms such as
>diahrrea/mucous/blood in stool which seems to be the main symtpoms for
>the people with IBD and IBS...can you please tell me some of your
>symptoms related to bowel endo. There really isn't much research out. I
>have always just assumed my pain was from endo- now I'm scared to death
>it is something along with endo. I would greatly appreciate any info on
>anything related to bowel endo, inflammatory bowel disease w/ endo...
>anything anyone thinks would help. I'm scared to death to have the
>hyst. and then find out that the pain is still there because of
>something that is treatable. I know a hyst. is not a fool-proof thing
>with endo (i think research says about 80% are relieved from pain) but
>it is all I have at this point. Thank you so much for any input! KIM
>
>At Thu, 30 Sep 2004, cheryl wrote:
>>
>>Has anyone out there had a bowel resection because of endo and still
>>symptomatic? I need advice I am still really sick dispite the bowel
>>resection and a total hysterectomy. I do believe the endo is still
>>alive and well.

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