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Re: Luperon: Dangerous Side Effects???
From: Amy (anonymous@obgyn.net)
Fri Oct 1 14:08:22 2004
My doctor wants to start me on Lupron, but I terrified of it. I've
heard it can cause terrible depression and mood swings and I already
have been diagnosed with having bi-polar disorder (long history of
depression, mood swings, etc...).
Seems like there has to be a better way for me???
At Thu, 30 Sep 2004, Amy wrote:
>
>Emily,
>
>I just want to share my experience, since you asked for advice. I am on
>my second time of Lupron and for me, I have not seemed to experience any
>long term side effects from it. (thank goodness!) I did the first
>course in 2001 and just started the second one a couple months ago. I
>do have the hot flashes and some night sweats, and an occasional mood
>swing, but nothing too hard to handle. I get so much relief from the
>Lupron (my pain goes away completely and the first time kept me pain
>free for over a year) that the trade-off of hot flashes, etc. is worth
>it. I do not gain weight either, I actually lose about 7-10 pounds. My
>bloated belly was gone within 3 weeks of starting this last round. I
>think my bcps make me retain a lot of water though, so maybe I lose it
>so quickly because I am not taking my pills when on the shot. The first
>time, my side effects went away after a month or two of stopping the
>injections, but the bloated belly came back when I restarted my birth
>control.
>
>I DO believe many women have experienced long term side effects though.
>I have read too much to think it cannot happen. It really does break my
>heart to read some of the stories women have gone through after taking
>it, and I count myself lucky to not have had it happen to me. Everyone
>reacts differently so it is hard to make a decision. I struggled with
>the decision for almost 3 years before giving in because I felt I had no
>other option. I would just continue to do your research and decide what
>you think is best for yourself. You can search the archives on the
>forum and find lots of posts on Lupron, some good, some bad.
>
>Good luck and hang in there!
>Amy Meyer
>
>At Wed, 29 Sep 2004, Emily wrote:
>>
>>I was given my first shot of Lupron Sept. 17th. I asked the Dr. about
>>the side effects and he gave me the normal hot flashes, night sweats,
>>etc. I had heard of many people with endo that have taken Lupron, so I
>>told my Dr. that I would give it a try. When I got home from the
>>appointment I did some research on Lupron and found many websites where
>>women are warning others of the long term side effects of Lupron. Their
>>"side effects" included seizures, cardiac problems, fibromyalgia, severe
>>bone loss, bad bruising, migraines, insomnia, joint pain, short term
>>memory loss, m.s., arthritis, stroke, vision damage, jaw pain, epilepsy,
>>and more.
>>This scared me and I am wanting to know if these side effects are really
>>from Lupron. I know that these women think so , but maybe the would
>>have had these problems anyway? I don't know. No studies have been done
>>on the long term side effects of Lupron. There is a petition for the
>>FDA to do a study on long term side effects.
>>I am scared to get another shot and thinking of not getting the second
>>shot, but I am feeling some pain relief from the Lupron. I am also
>>having hot flashes, night sweats, migraines (every day), nausea, sore
>>muscles, sore joints, and bone pain. I have heard that the side effects
>>will increase with the second shot.
>>what have you experienced and what are your thoughts about long term
>>effects???
>>
>>Thanks for any feedback and/or advice and personal experiences. :)
>>
>>--
>>Emily
>>
--
Amy
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