|
Re: Losing the will to live
From: Amy (anonymous@obgyn.net)
Fri Oct 1 13:23:31 2004
You have been struggling for so long, so I can see how you are tired and
discouraged. I am newly diagnosed, stage 4 endo. Living with daily
pain. I can relate to practically living in the bathroom! Just had a
laparotomy 6 weeks ago, got a post op infection, was on IV antibiotics
st home for 3 weeks, high fever...Only Percocet at this point gets me
through the day. Can't take Advil or hormones because I have severe
high blood pressure. I'm 36, otherwise healthy, normal weight. Didn't
even KNOW that I had endo until 8 weeks ago, they kept thinking I had
colitis or some bowel ailment.
Please hang in there. Maybe you need your pain control regimen
reevaluated? My prayers are with you.God bless you, Amy.
at Thu, 30 Sep 2004, Margie wrote:
>
>Hi there.
>
>I have been away for awhile as I have had my latest (#5) lap. What you
>describe is similar to the pain before I had lap #4. The pain in my
>abdomen was so bad that I used to blank out (my vision used to go
>momentarily). I would get all hot and sweaty and the pain would take
>over my body. I would get the sensation that I was going to pass out
>and would have to find a bathroom fast. The pains would come and go and
>I too, couldn't take it any more. I went to my endo surgeon and did my
>lap. I had endo all over, including the pararectal spaces and on the
>rectum. A few months after my lap, the pain was gone.
>
>This time, I had pain like before. I would no sooner feel constipated
>and when I would go to the bathroom, the initial bowel movement would be
>continued with an episode of diarrhea. Don't understand how that
>happens, but it does. This time, the endo was not so bad, though there
>was some in the pararectal spaces again. I am only 13 days post-op, so
>I am not sure how I will fare, but I keep my fingers crossed.
>
>In case you were wondering, I have never had a colonoscopy. All of this
>was due to the endo.
>
>Try to stay positive. I have been suffering almost 21 years. It can be
>too much sometimes, but there is always something to live for!
>
>Hope this helps.
>
>At Wed, 29 Sep 2004, ann wrote:
>>
>>At Wed, 29 Sep 2004, anonymous wrote:
>>>
>>>Hi
>>>
>>>I have been in sooooo much pain recently and I know there is something
>>>wrong. For the last couple of weeks or so I have been suffering severe
>>>pain in my lower left abdomen and then it switches to the right side of
>>>my abdomen, along with quite severe pain when I need to pass a bowel
>>>motion. This pain is different to my endo pain and I feel that
>>>something else is going on in there. I had a colonoscopy which should
>>>reveal more when I go for results next week. Has anyone any idea as to
>>>what may be causing these symptoms or has anyone experienced the same as
>>>me, as I am losing the will to live!
>>>
>>>Thanks for any replys
>>
>>Please know that you are not alone. I have the same pains you
>>described. Bowel pain for me has been the most severe of all of the
>>pains I've experienced over the past 15 years. For me, the everyday
>>"toothache pain" that never goes away is totally different from the
>>bowel pain. I've had 2 kids and the bowel pain was stronger than labor
>>for me.(I did have 2 sections, so I can't say what a vaginal birth is
>>like for pain) I do in fact do the breathing they teach you in Lamaz for
>>the bowel pain. Those are the times that I feel like I'm either going
>>to throw up or pass out.
>>
>>I'm not sure why the pain happens when it does. Not on a regular basis
>>for me. I have spoken with Dr. Andrew Cook and have decided to have my
>>4th endo operation with him the first of the year (b/c of insurance) I
>>feel that I will get some true answers from him after he takes a look
>>under the hood.
>>
>>Keep your chin up and know that there are many women that care about
>>you!
>>
>>Ann K
>
>--
>Margie
>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)