ENDO Messages for September, 2004: Re: Losing the will to live

Re: Losing the will to live - to Amy-Back to Anonymous

From: Amy (anonymous@obgyn.net)
Thu Sep 30 10:15:38 2004

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My bowel symptoms are: lots of loose stools any time of my cycle, diarrhea when on my period. Painful bowel movements, especially when I am on my period. Pressure and pain in my rectal area (including pelvic and tail bones) regardless of what point my cycle is in. I also bleed sometimes from my vagina if I strain to have a bowel movement. The blood is always bright red so I know it is fresh blood. If I sit for long periods of time or ride in a car for awhile, I will often start bleeding from my vagina, again bright red blood. I also am nauseous a lot.

I did have a colonoscopy to rule out any other cause and nothing was found, so we (me and Doctor)know it is from the endo. I have endo adhesions on my actual bowel and all three laps I have had show the uterus and bowel to be stuck together from scar tissue. After my laps when this scar tissue is removed and the bowel and uterus are freed up and no longer stuck together, the pain and pressure goes away and my bowel movements are normal. This lasts for awhile and then it gets bad again. My colon looks great from the inside so at least I have the peace of mind to know nothing else is wrong. I have Stage 3 endo and for me, the rectal pain is one of the worst parts. I have lots of pain elsewhere too though. I just had my third lap in June and Doc freed up the bowel and uterus. I could tell the day after surgery that he had done this because the rectal pain was completely gone. I am also now doing a second course of Lupron (first was in 2001) and am not experiencing any endo pain at all, anywhere. I know it is only a matter of time before it returns though, which stinks! I am going for total hysto (including ovaries) next time things get bad again. I hope this latest lap and lupron at least buys me a year or two before I have to get radical. I have battled endo for 12 years now, and at age 33, am too tired to keep fighting, so I want it all gone when it comes back. My doctor supports that decision, so at least I don't have to worry about dealing with a doctor who thinks I am too young for complete organ removal.

If I can help or answer more questions, post back on the forum to me, or feel free to email me at ameyer@dbllaw.com. I will keep your email address private.

Thanks! Amy

At Wed, 29 Sep 2004, anonymous wrote: >
>Hi Amy
>
>Thanks for replying.
>They found endo and leisons on my bowel in my 2nd lap but they wanted to
>see if it was inside the bowel through the colonoscopy. What symptoms
>do you suffer from with bowel endo and what treatment are you on? I am
>being referred to a specialist in a good hospital so that should help. I
>was admitted to hospial for 5 days about a month ago and its getting
>worse!! I have no idea what to do becuase I don't want to take lupron as
>they tell me my endo is only stage 2. At the moment I have the mirena
>in (and haven't bled for 10 months!) but not sure whether that is
>contributing to my pain as I have adenomyosis.
>Sorry to go on - just need advice.
>
>Thanks again
>
>At Wed, 29 Sep 2004, Amy wrote:
>>
>>Hang in there! This damn disease is not worth dying for, even though
>>some days it would seem easier. I have bowel pain too and it is because
>>I have endo on my bowels. Has that ever been found in your laps? I also
>>had a colonoscopy and it was normal so my pain is definitely from the
>>endo. Make sure you call your OB/Gyn and report this "new" pain. They
>>may want to do an ultrasound to make sure there isn't anything else
>>going on, like a cyst. I notice that my endo pain is very unpredictable
>>and can occur at anytime, in place in my body. I have lots of pain on
>>my right side but there is nothing wrong there! Go figure! Doc says that
>>the left side is very bad, so the pain on the right is "referred pain"
>>from the left. How weird is that? If the endo is close to nerves, it
>>can cause more severe pain. Maybe your endo is just progressing and
>>effecting you differently now? Just a thought. I would definitely call
>>my OB.
>>
>>We are here for you on the forum!!
>>Hugs!!!
>>Amy Meyer
>>
>>At Wed, 29 Sep 2004, anonymous wrote:
>>>
>>>Hi
>>>
>>>I have been in sooooo much pain recently and I know there is something
>>>wrong. For the last couple of weeks or so I have been suffering severe
>>>pain in my lower left abdomen and then it switches to the right side of
>>>my abdomen, along with quite severe pain when I need to pass a bowel
>>>motion. This pain is different to my endo pain and I feel that
>>>something else is going on in there. I had a colonoscopy which should
>>>reveal more when I go for results next week. Has anyone any idea as to
>>>what may be causing these symptoms or has anyone experienced the same as
>>>me, as I am losing the will to live!
>>>
>>>Thanks for any replys

Next message: Amy: "Re: Is there anything out there for sex drives?"
Previous message: NIKKIE: "Re: Luperon: Dangerous Side Effects???"
In reply to: anonymous: "Re: Losing the will to live - to Amy"
Next in thread: Lori: "Re: Losing the will to live"

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