ENDO Messages for September, 2004: Re: Allen-Masters syndrome, pubic symphysis and endo

Re: Allen-Masters syndrome, pubic symphysis and endo

From: Tricia (anonymous@obgyn.net)
Tue Sep 28 10:49:55 2004

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In reply to: Marinda: "Re: Allen-Masters syndrome, pubic symphysis and endo"

At Tue, 28 Sep 2004, Marinda wrote: >
>Two years ago, I found out that I have Allen-Masters Syndrome,
>Endometriosis, Cervical Cancer, Protein S Deficiency, and Protein C
>Deficiency. That's a lot to take in at the age of 23! I have undergone
>several surgeries for the Endometriosis and the Cervical Cancer, but my
>doctor had never seen the Allen-Masters Syndrome. He's done a lot of
>research and has come to the conclusion that there is no "cure" for this
>disease. I am now taking BC continuously to help ease the pain and
>"shut down" my system. But I am still hemmoraging quite a bit. This is
>the first time I am trying to get some information myself as I have two
>young children and don't usually have the time for research. Have you
>found anything that truly helps this pain? Is there a "cure" for
>Allen-Masters Syndrome or am I to live in pain until my required
>hysterectomy in another 2 years?

I have something called a Allen-Masters Windo dose this have any thing to do with your Allen-Masters Syndrome? I have had two sugerys this year to help me with the pain, plus Lupron for six months and it is up on the 20th of next month. My only thing I can do now is go back on Depo-vera shot so I do not have my monthly sicals. I sill have a lot of pain when I move around to much. Plus my tummy will swell up every night that hurts really badly. I am 24 and I also have two boys but, I can not get fixed tell I am 40 or over. Tricia

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In reply to: Marinda: "Re: Allen-Masters syndrome, pubic symphysis and endo"

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