ENDO Messages for September, 2004: Re: Advice Please (Long..Sorry!)

Re: Advice Please (Long..Sorry!)

From: NIKKIE (anonymous@obgyn.net)
Tue Sep 28 10:26:50 2004

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In reply to: Lauren: "Advice Please (Long..Sorry!)"

LAUREN, I AM SORRY TO HEAR YOU A HAVING A HORRIBLE TIME AND YOU ARE SUCH PAIN. I TOO USED TO BLEED MOST OF THE MONTH. BUT I AM ON LUPRON AND NO LONGER BLEED. I ALSO IN A LOT OF PAIN. THE PAIN HAS GOTTEN BETTER WITH THE LUPRON. MY DOCTOR HATES GIVING ME PAIN PILLS. HE IS KNOW SENDING ME TO THE PAIN CLINIC. I AHVE MY FIRST CONSULTATION TODAY. I WILL LET YOU KNOW HOW IT WORKS. I FOR THE PAIN ALSO TAKE NON- NARCOTIC PILSS. SEE IF YOUR DOCTOR WILL GIVE YOU TAHT AT LEAST. I ALSO LIVE WITH A HEATING PAD ON ME ALL THE TIME AND HOT BATHS. THERE IS ALSO A DIET TO FOLLOW. PEOPLE THAT FOLLOW THAT DIET SWEAR BY IT. IF YOU FEEL YOU NEED A LAP. INSIT YOUR DOCTOR GIVE YOU ONE. MAYBE YOU SHOULD ALSO CONSIDER SEEING ANOTHER DOCTOR. I HOPE YOU START TO FEEL BETTER SOON.. NIKKIE HANG IN THERE At Tue, 28 Sep 2004, Lauren wrote: >
>I have been having a horrible last month and no sure what to do ...
>
>I was diagnosed with Endo in 2000 (through surgery). Since then I have
>been on continous birth control and try to do Tai Chi to help with the
>pain. Also I have tried acupuncture and am trying to start up again
>(before it didn't have much effect I am hoping this next time will be
>different.)
>
>Normally I still have pain about 7-10 days out of a month and have no
>desire to move but this last month I have had it everyday, I can't sleep
>at nights, I have a horrible migraine, and the pain is in my back as
>well as in my lower abdomin (around my ovaries where my normal pain is)!
>Also I pretty much bleed everyday.
>
>I take Vicidan for the pain but it barely works (I think my body is
>getting used to it) and after the 10 pills I have left my doc says no
>more. In fact my doc sucks, he refuses to see me again unless I agree
>to go on Lupron but I am a medical research scientist and 22 and refuse
>to go on this.
>
>Now today I passed a huge clot (the size of a tampon that was a little
>white sac filled with blood vessels). It really scared me.
>
>I don't know what to do. I went to my normal doctor last week and they
>said they just figured it was all endo because there was nothing else
>wrong with me.
>
>Would another surgery help? Maybe I have lots of new adhesions? I really
>can't live like this - as it is I just want to curl up in bed and never
>get up!

--
NIKKIE

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