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Re: Anyone with Endo AND epilepsy?
From: Kerrilynn (anonymous@obgyn.net)
Thu Sep 23 08:57:24 2004
I have been trying to figure that out myself. I have a fairly strong
biomedical background and neuroscience is my main feild and I havent
been able to find a link. Except this one site that states that the
high estrogen levels can exacerbate seizures. I am in in the process of
contacting a former professer of mine that also has a strong background
in neuroscience who suffers from endo, maybe she can help. I do know
that menstruation in general is a factor for epilepsy and can bring on a
seizure. I dont know the root has more of a hormonal basis or is more
pain based. I will get back to you though. My email is
Karebear8982@hotmail.com.
K
At Thu, 23 Sep 2004, Brenda wrote:
>
>Hello:
>
>I don't have both, I only have endo. I found your post very interesting
>because my mom has epilepsy and she also had focal seizures, a few times
>she has had the convulsing ones. She ended up having brain surgery to
>remove scar tissue, and she has been seizure free for over 5 years. If
>any of my family members had endo they aren't aware of it, so in my case
>I don't know if you can say it is inherited or not. What makes me
>wonder now by your post is if epilepsy and endo are related? Do you know
>what I mean? Maybe my mom did/does have endo but doesn't realize it. Do
>you have any other information on this? If so you can email me at
>bldavis1972@yahoo.com or post it on here.
>
>Thanks and good luck!
>At Wed, 22 Sep 2004, Kerrilynn wrote:
>>
>>I know this may be a stretch of a question. but I am 22 and recently
>>diagnosed with Partial Epilepsy. Meaning, I have focal seizures rather
>>than the tonic-clonic (convulsing) ones. Focal seizures come in all
>>shapes and sizes, can last anywhere from seconds to minutes and involve
>>anything from twitching to smacking lipis to loss of vision and mental
>>confusion. Sometimes its really hard to differentiate what is and isnt
>>a seizure. Granted there are signs and symptoms to look out for that
>>are tell-tale, I just havent been able to recognize them yet.
>>
>>I also have been diagnosed with Endo for a little over a year and had a
>>lap last november. I guess they called it stage one. The doctor never
>>really said. Just cut out a few peices and lazered what she could of
>>the rest (she said it was deep and on a blood vessel). Tried the
>>deop-provera, continuous Ovcon-35, and now I am on ortho-evra. Since
>>the Depo, I havent had a normal period and have been in the ER 3 times
>>with a ruptured cyst, and severe pain, morphine didnt even kill it. I've
>>been experiencing much GI distress as well. I see a new dr in two
>>weeks.
>>
>>My main question is if anyone else deals with both disorders/diseases. I
>>did some research and learned that Endo can exacerbate epilepsy because
>>of the pain and high estrogen levels. I was wondering what anyone was
>>able to do to help alleviate and/or treat the two.
>>
>>Feeling lost.
>>K
>
>--
>Brenda
>
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