ENDO Messages for September, 2004: Re: has anyone experienced this???

Re: has anyone experienced this???

From: Jude (anonymous@obgyn.net)
Thu Sep 16 17:41:57 2004

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Dear Jess,

I'm sorry to hear you are having such an awful time with endo. You are not alone!!! I too have had similar endo experiences with ovarian cysts and a bad time with provera and depo-provera in which I bled constantly for six months until I stopped taking it. I personally don't think provera or depo-provera are effective treatments for endo, but this comes from my own biased experience that I cannot back up with any scientific data.

I have had some relief with major diet changes and vitamin supplements. The following I find most helpful: a Women's multi supplement, make sure it is a good quality supplement with at least 25mg of B vitamins; A bio-magnesium supplement to help with cramps; and marine fish oil capsules to help relieve inflammation. I have also made some major diet changes that include: low dairy - hard cheese and acidophilus yoghurt only and no wheat - this includes breads, baking, sauces, soups, everything. Also I have cut out sweets, fizzy drinks and coffee. I found that these changes have helped me manage my bloating and pain but it doesn't make it go away. If you are able, some gentle exercise like walking I have found personally helpful.

To do all of the above I consulted a dietician and a naturopath to make sure that I am eating healthy and taking safe amounts of vitamins. I would also think about getting a second opinion if I were in your shoes.

All the best, Jude.

At Thu, 16 Sep 2004, Jess wrote: >
>I was diagnosed with endo. last year (Oct. 2003) after having
>laporscopy surgery. It was only in phase I but it covered all my pelvic
>some intestines, and my uterus. I have always had severe pain and was
>put on birth control at an early age 14. Since the surgery I was put on
>double shots of depo provera for three months straight. December 2003
>was my last shot. I got married and my husband and I decided to try and
>have kids. I started having a period again in March and bleed
>continously until May. Than for some reason it stopped. No period at
>all. The pain continued to worsen. I visited my doctor and he decided
>to put me on provera to try and start my period. I did that for two
>months and nothing happened except my pain worsened. I went to see my
>doctor again and he decided the past option right now was to have
>surgery again. I had another laporscopy done. This surgery reveled
>that I had a cyst on my right ovary and that the endo. had spread again
>and now had worsened it was now on my stomach ligaments also and that is
>why i had so much pain. Which my doctor had informed me this is rare
>since endo is suppose to grow when you have a period and I haven't. He
>said that it is growing faster. after the surgery the doctor has put me
>on clomid. Which is horrible. It made the pain intensify. I am taking
>pain killers everyday but it doesn't seem to be working. I had another
>blood test done and it shows that after using the clomid I still have
>not ovulating. So starting today I am going back on provera to try and
>start my period. Which by now I feel will never come. I am bloated,
>emotional, and in pain everyday. Does anyone have any advise? Is there
>other treatments out there to help? I have bought some books lately and
>said something about nutrition and other alternatives to help with the
>pain. Do they work? Thank you for your time in reading this,
>
>--
>Jess
>

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