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Re: New here ... rather long
From: Amy (anonymous@obgyn.net)
Tue Sep 14 07:21:56 2004
Hi Amy! My name is Amy too! Just wanted to say that we are all here to
support you and can totally relate. I was diagnosed 10 years ago and
have had three laps and am on a second round of Lupron. (which luckily
for me, works very well with few side effects, short or long term. I am
one of the lucky ones). I am sorry to hear you have had hard time with
endo. It is definitely a dreadful disease. I just wanted to say that
you are not alone and to hang in there! Hopefully the Lupron will help
you for awhile. It can take a couple months to see results, so if you
are not feeling better yet, it may just take time. If it doesn't seem
to help you, talk to your Doc about some other options.
Hang in there! Feel free to email me direct if you ever need to.
ameyer@dbllaw.com. You and I have very similar situations, besides
sharing a great name! ha ha
Hugs!
Amy Meyer
At Fri, 10 Sep 2004, Amy wrote:
>
>Hi,
>I've been lurking for about a month or so, (when I've had power.) I live
>in fl. and have been married for 5 years we have one daughter(4). I
>was diagnosed in April with endo after years of symptoms. Most of which
>I thought were just normal women stuff but found out that life was not
>supposed to be so painful. So I finally had a reason for what was going
>on, now just to find a way to deal with it all. Right now I am on
>lupron, just a bout to get my second shot. I know it is controversial,
>but for me it was worth the risk to hopefully buy a few months of pain
>free life. So far it's notworking, all the pain and side effects. But
>I'm still optimistic. I would love to have a normal marital
>relationship with my husband. instead of feeling like a guinea pig
>every time, "let's just try, maybe this time it won't hurt..." and it
>always endng with me in a crying pain stricken ball. I desperately want
>to be the mom that our daughter deserves also. It's no fun saying that
>I can't pick her up or that I can't play because of the pain.
>so far everything i've seen here seems really supportive and that we are
>all in the same boat. Which is oddly comforting. But for the time
>being this is my life and I need someone who understands my day to day
>struggles.
>So now that i've rambled, here's a bit of history of my endo. Symptoms
>from as early as i started my period about 8 years old. Just in the
>last year though it all came to a head for me to find out what was going
>on. Had a period that sent me to the er after talking to my obgyn and
>being told that, "no, going through 5 pads in an hour is not normal."
>then we started the sonograms, mri's, blood work and a surgery to check
>for uterine cancer. All along symptoms getting worse, pelvic pain all
>month long, worse around ovulation and periods. Painful sex. bloating
>and a bunch of other fun stuff. i finally had my lap in april and was
>told what i already knew by this point. i had already researched this
>fun disease and treatment options. So I knew that my diagnosis was just
>the beginning. But still I hoped to buy some time with the lap but
>within a month I was right back to where i started, pain not as intense
>but still very much there. So when the gyn suggested Lupron we had a
>very honest converstaion on it. I was glad i was informed about it
>already. So I had my questions really answered instead of just
>thinking, here's a drug that is going to solve everything. So, here i
>am. new here and seeking support and knowledge.
>
>--
>Amy
>
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