ENDO Messages for August, 2004: Re: Lupron

Re: Lupron

From: Amy (anonymous@obgyn.net)
Tue Aug 31 11:32:02 2004

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Just want to post my story (which has been posted several times) to say that I have had a very positive experience on Lupron. In my case, it has been a wonder drug that has so far shown no long term side effects. I did it once before in 2000 and am currently on it again. All of my side effects disappear within a couple months of stopping the shot and I have not noticed anything long term. For me, the trade off of no pain and having some normalcy in my life has been worth the minor side effects I experience. I know there is a lot of negative stories, and lots of scary info on it. I did plenty of my own research before I began taking it. All of it can be overwhelming and confusing. Doc says do it, but much info says don't. Just one more difficult decision those of us with endo must make. All I can say is that for me it has been a miracle, but not everyone will be as lucky. Just do your research and make a decision for yourself.

Hugs to all! Amy Meyer

At Mon, 30 Aug 2004, Jennette wrote: >
>I am reading a lot of people talking about Lupron shots and how this
>stuff works.
>
>What I read is that this "drug" shuts down the pituitary gland and thus
>stops hormones from being released. Not just estrogen, but all that the
>pituitary gland controls. This drug does not affect the ovaries
>directly so they aren't "trying" to compensate because they are getting
>their orders from the pituitary gland which is in the brain.
>
>This "drug", Lupron.... is very powerful, it's nothing to take lightly
>and probably is affecting people throughout their lives. Certainly
>those people who are experiencing negative effects can attest to the
>fact that they suffer for years after stopping the drug.
>
>I would almost bet, in years to come, this drug will be on the list of
>drugs that induce harmful effects for the users. Remember, it was
>produced to fight severe cancer of the prostate, and now it's being
>passed out like candy to everyone with endometriosis since being
>"approved" for this use. This doesn't make the drug safe. In time, I
>believe we will once again see lawsuits by people who suffer damage due
>to the use of this drug, just like so many others that aren't properly
>and thoroughly tested before handed out to people who really don't have
>enough information to make a decision whether or not to take it.
>
>The fact that doctors are pushing this drug makes me wonder about it. It
>doesn't seem to be the "wonder drug" that the doctors make a fuss about.
>
>Jennette

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