Re: Lupron
From: anonymous (anonymous@obgyn.net)
Tue Aug 31 11:19:49 2004
I have read the posts regarding Lupron's dangers. I have read the posts
from those who say they are helped by it. This post (under mine) is
very bitter and cruel. I have not seen any of this from those who are
simply posting the information on Lupron.
There is no need to take negative comments personally. No one is
attacking you for using it, they are attacking Lupron. You are not a
target, and no one has said anything against you. Please stop writing
back angrily.
At Tue, 31 Aug 2004, anonymous wrote:
>
>I agree! I am so sick of hearing about this! If you are such a strong
>opponent of Lupron, then don't do it yourself but let everyone else make
>their own decisions! I've done it several times and have never had
>anything other than what the doctor told me to expect, and 6 years after
>taking it the first time, still have no long term side effects. It may
>not be for everyone but the terror you are making some women feel is
>getting ridiculous! We all come here for SUPPORT, not to be terrorized
>and paranoid. I let all the negative things stop me from trying it for
>several years. Then I decided to do it since everyone will react
>different. (Yes, I finally grew up and let myself make a decision
>instead of being influenced by others who believe too much about what
>they read.) It has been my miracle drug and given me my life back! NO
>PAIN!!!!!!!!!!!!! When endo causes you to contemplate suicide, almost
>lose your husband, job, friends, sanity, etc. and then you find
>something that gives you everything back, you count your blessings. And
>while it is not a permanent fix, it does buy time and allow me to feel
>like a normal person. Just to feel young again instead of like an 80
>year old is well worth a few hot flashes and night sweats.
>
>As said below: How long are they taking it? It is definitely not
>recommended for more than six months, yet many of the complainers state
>they have been on it for a year or more! Duh! What do you expect? Even
>when used for prostrate cancer it is not done for long periods of time.
>And, as said, are they taking care of themselves while on it? Of course
>you are going to have joint pain while taking it if you don't supplement
>the necessary vitamins like calcium. Do you not know that natural
>menopause causes many of the long term effects that you read about
>Lupron?
>
>I don't support or oppose Lupron for EVERYONE ELSE but support myself in
>taking it and do not try to push it on anyone. But if the situation was
>different, I would also keep my mouth shut and let each woman decide for
>HERSELF!
>
>Have you tried it yourself?? If not, back off! You have no idea how
>someone else will react or what it can or cannot do for their situation!
>Don't get out and do your research and then post it here if you have no
>first hand experience. Even things like tylenol and cough syrup can be
>fatal or detrimental for some people. Why?? Because everyone is
>DIFFERENT!! What pi**es me off so bad is not that I think everyone
>should do it, but that there are some people who are so opinionated that
>they think everyone else should follow their lead!
>
>At Mon, 30 Aug 2004, anonymous wrote:
>>
>>At Mon, 30 Aug 2004, anonymous wrote:
>>>Ok I guess I'm really going to vent so here it goes. First of all don't beleive everything you read! Second of all, I feel the main reason we hear about all the negative side effects from lupron within this site is that we are all here looking for support. Very rarely do I come in here and see anything positive. It makes me sick when I read about someone scared to try lupron becuase of what they have read in here. I haven't had any side effects other than what my specialist told me I would have and I don't foresee me having any down the road.
>>The recommended dosage is not suppose to exceed 6 shots, so the story in
>>the "newspaper" stated that the woman had been on lupron for 18 months,
>>maybe that could have something to do with it? Also, are all the lupron
>>users taking the amount of calcium/vit D supplements that you are
>>supposed to take while on lupron? Do you smoke on lupron?
>>I understand and beleive that lupron has nasty side effects but I feel
>>that people aren't giving something a chance becuase they are scared to
>>death from everything they have heard, my husband often tells me not to
>>read to much and now I know why!!
>>Sorry for all of you who were given the option to take lupron and didn't
>>because you were scared from what you have heard on here. Everyone
>>reacts differently to everything and I don't know of one product out
>>there that doesn't have potential side effects. I am fianlly pain free
>>because of lupron and thank god for it!! That is something I haven't
>>been able to say for the better part of my life.
>>Grrrrrrrrrrrrrrrrrrrr!!!!
>>>more info about all of it:
>>>http://www.endocenter.org/lupron.htm
>>>
>>>--
>>>anonymous!Grrrrrrrrrrr
>>>
>>>>At Mon, 30 Aug 2004, Jennette wrote:
>>>>>Could you please share with me and others where you got your information, I would like to read about it.
>>>>Thanks,
>>>>Amanda P
>>>>>I am reading a lot of people talking about Lupron shots and how this
>>>>>stuff works.
>>>>>
>>>>>What I read is that this "drug" shuts down the pituitary gland and thus
>>>>>stops hormones from being released. Not just estrogen, but all that the
>>>>>pituitary gland controls. This drug does not affect the ovaries
>>>>>directly so they aren't "trying" to compensate because they are getting
>>>>>their orders from the pituitary gland which is in the brain.
>>>>>
>>>>>This "drug", Lupron.... is very powerful, it's nothing to take lightly
>>>>>and probably is affecting people throughout their lives. Certainly
>>>>>those people who are experiencing negative effects can attest to the
>>>>>fact that they suffer for years after stopping the drug.
>>>>>
>>>>>I would almost bet, in years to come, this drug will be on the list of
>>>>>drugs that induce harmful effects for the users. Remember, it was
>>>>>produced to fight severe cancer of the prostate, and now it's being
>>>>>passed out like candy to everyone with endometriosis since being
>>>>>"approved" for this use. This doesn't make the drug safe. In time, I
>>>>>believe we will once again see lawsuits by people who suffer damage due
>>>>>to the use of this drug, just like so many others that aren't properly
>>>>>and thoroughly tested before handed out to people who really don't have
>>>>>enough information to make a decision whether or not to take it.
>>>>>
>>>>>The fact that doctors are pushing this drug makes me wonder about it. It
>>>>>doesn't seem to be the "wonder drug" that the doctors make a fuss about.
>>>>>
>>>>>Jennette
>>>
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