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Re: Diaphragmatic Endometriosis
From: Batgirl (anonymous@obgyn.net)
Tue Aug 31 11:07:10 2004
I have problem taking weight off.... but I too have rapid heart beat,
low blood pressure and often feel dizzy. It sure is nice to hear from
someone with the same symptoms. As for the rapid heart beat my family
doc thought it was strange and sent me to a heart specialist, who told
me it was perfectly normal and nothing to worry about. As for low blood
pressure, the doctor told me I should be grateful and I'd make a great
athlete because of it! I hadn't made the connection between that and
endo before now.
At Mon, 30 Aug 2004, jules wrote:
>
>no, it doesn't make sense, but I have the same thing too. My doc wants
>me to see a gastroenterologist, but I know it's the endo, I have stage 4
>endo, on literally everything in my stomache, I can tell when it's
>acting up, and it's always worse around my period. Peeing does seem
>like it will help, but it doesn't help enough, and sometimes it makes me
>throw up. Then I"m perfectly fine, like nothing was wrong. But it's
>aweful, the pain, food intolerances, and I can't keep weight on. Most
>women love my body, but they don't know how I struggle to keep on
>weight, I'm 5'10, 120 pounds and that's hard to maintain. That's way
>too light for my height, I have NO energy, fast heart beat, low blood
>pressure, and often feel dizzy. It's hard to have a life between all
>the pain and no energy. I'm trying the shark cartilage (see previous
>posting) hoping it will resolve the endo surgery left behind, I'll let
>you know how I progress with it. If anyone else has any ideas to stop
>this, please please post them!! thanks so much, best wishes
>
>At Sat, 28 Aug 2004, Tina wrote:
>>
>>I was reading your postings and just wanted to say WOW! I wouldn't put
>>anything past this little demon we have in our bodies! It sounds to me
>>like it goes anywhere it wants to. Good luck to you and please post
>>more information as you get it.
>>
>>At Sat, 28 Aug 2004, Lisa wrote:
>>>
>>>I can't believe what I am reading. I had my gall bladder removed last
>>>month because of this phantom pain that hasnt gone away. I am so happy
>>>that this is not just something that my GI Dr. seems to think I have
>>>made up. I am sharing your tears, Terri. I go in for Laparoscopic
>>>surgery on Sept 8 and Im hoping and praying they see it all. I have
>>>adhesions from 2 C-sections that have sealed my uterus to the front of
>>>my abdomen and adhesions throughout. I never would have though
>>>endo/adhesions could do all of this. It is just a relief to get an
>>>answer.
>>>
>>>--
>>>Lisa
>>>
>>>At Thu, 29 Jul 2004, Terri wrote:
>>>>
>>>>Hi Laurie,
>>>>I just found someone finally who is explaining my exact symptoms! I
>>>>would love to hear from you as now that I have basically diagnosed
>>>>myself, I need direction as to how to find a specialist who can help me.
>>>>Can you help??? I am in tears just knowing now I may have found why I
>>>>have been in such pain.
>>>>Thanks!
>>>>Terri
>>>>
>>>>At Sun, 25 May 2003, Laurie wrote:
>>>>>
>>>>>I would really appreciate information on diaphragmatic endometriosis. I
>>>>>am trying to see if the symptoms I experience fit with the symptoms of
>>>>>diaphragmatic endometriosis. Basically, I have pain under my right rib
>>>>>off and on and in varying intensities ranging from a background type of
>>>>>annoyance to a hot, flaming pain that feels like it will bore a hole
>>>>>right through me (I feel it in the front and back). I also experience
>>>>>terrible neck and shoulder pain.....and its all on the right. I do have
>>>>>a hietal hernia and wonder if that plays any part. I have taken all of
>>>>>the meds for GERD but they don't seem to help this pain. I've had my
>>>>>gallbladder removed - but still have pain. I have noticed lately, that
>>>>>if I use my had to push downward on the area between my ribs, it
>>>>>decreases the pain slightly. Another way that I would describe the pain
>>>>>is like a "side ache" or "stitch" that runners get (I also get the pain
>>>>>when I run, but have it terribly when I sit or lay down, as well). And,
>>>>>last but not least, I go through bouts of terrible, terrible pressure on
>>>>>what feels like my kidneys. It wakes me up at night and the only thing
>>>>>that seems like it might help is to urinate. However, urinating doesn't
>>>>>help and I am forced to get up, no matter what time it is, in order to
>>>>>move around a bit to help dissipate the pain.
>>>>>
>>>>>Does any of this make sense?
>>>>>
>>>>>I would REALLY appreciate any leads!!!
>>>>>
>>>>>-Laurie
>>>
>>>--
>>>LIHbb@aol.com
>>>
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