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Re: Lupron
From: anonymous (anonymous@obgyn.net)
Tue Aug 31 10:40:50 2004
I thought it was pretty sad, ironic, whatever that as I'm reading these
messages, the link above the forum for one of the MANY pharmaceutical
companies that support this website was for TAP Pharmaceuticals, makers
of Lupron. Clicking the link takes you to a webpage (not clearly
identified as a TAP page, by the way) which requests all your personal
info in exchange for a "handy doc discussion guide." Riiiight...
At Tue, 31 Aug 2004, anonymous@obgyn.net wrote:
>
>>I agree! I am so sick of hearing about this!<
>
>Wow. Bitch much? Nice attitude for a SUPPORT forum. Word to the wise:
>read subject headers and decide what you want to read FIRST.
>
>>If you are such a strong opponent of Lupron, then don't do it yourself but let everyone else make their own decisions!<
>
>Yep. Let them make their own decision. AFTER they have ALL the
>information available to them - good and bad. I never cease to be
>amazed at the sheer hostility that erupts from pro-Lupron users against
>those who have the "nerve" to share their bad experiences. Like those
>experiences aren't real and it's a personal affront to people like you
>who think Lupron is peachy. As if.
>
>>>I've done it several times and have never had anything other than what the doctor told me to expect, and 6 years after taking it the first time, still have no long term side effects.<<
>
>Lucky you! And that makes someone else's horrid trauma as a result of
>Lupron any less relevent...how, exactly?
>
>WHY SHOULD THE INJURED BE SILENCED???
>
>>It may not be for everyone but the terror you are making some women feel is
>>getting ridiculous!>>
>
>Yes, I remember the terror I felt after I read my first negative Lupron
>experience post. I had to attend therapy sessions to deal with the post
>traumatic stress. Get real, please.
>
>>>We all come here for SUPPORT, not to be terrorized
>>and paranoid.<<
>
>Nor does anyone come here to be SILENCED, badgered, belittled,
>invalidated or condescended to - much as you are doing right now by your
>posting.
>
>>>I let all the negative things stop me from trying it for
>>several years.<<
>
>Don't you feel silly now? Why didn't you practice what you're obviously
>so good at PREACHING?
>
>>Then I decided to do it since everyone will react
>>different. (Yes, I finally grew up and let myself make a decision
>>instead of being influenced by others who believe too much about what
>>they read.)<<
>
>Gosh, I hope NO ONE is influenced into taking a drug based on your sales
>pitching and hostility towards those who don't like the drug!
>
>>>It has been my miracle drug and given me my life back!<<
>
>Clearly it took your personality, however. Or have you always been a
>nasty bitch who cares about no one but yourself?
>
>>As said below: How long are they taking it? It is definitely not
>>recommended for more than six months, yet many of the complainers state
>>they have been on it for a year or more! Duh! What do you expect?<<
>
>Hey - before you get around to practicing medicine and offering advice
>on the Internet, check your facts. Lupron IS approved for MORE than 6
>mons., with addback therapy. And it is also a FACT that it is perfectly
>legal and acceptable, although lacks ethics, to use Lupron in a patient
>in an off-label manner, which means for more than year.
>
>>Even
>>when used for prostrate cancer<<
>
>What is prostrate cancer? Is that where you have cancer that makes you
>lay down flat? I only know about Lupron usage in prosTATE cancer.
>
><Do you not know that natural
>>menopause causes many of the long term effects that you read about
>>Lupron?
>
>Do you not know that surgical, medical and natural menopause are all
>completely different in terms of side effects, feelings, etc. etc.? Or
>have you experienced all 3 and can speak as an expert on the topic, much
>as you can on Lupron?
>
>>I don't support or oppose Lupron for EVERYONE ELSE but support myself in
>>taking it and do not try to push it on anyone.<<
>
>You did nothing in your post but bash those who might want (gasp!) ALL
>information about a treatment and who might decide that the effects have
>been so bad for so many others than they don't want it.
>
> But if the situation was
>>different, I would also keep my mouth shut and let each woman decide for
>>HERSELF!
>>
>Ahh...the first part of your post I agree with. You should keep your
>mouth shut.
>
>>>What pi**es me off so bad is not that I think everyone
>>should do it, but that there are some people who are so opinionated that
>>they think everyone else should follow their lead!
>>
>Pot, kettle, black. You know the saying.
>
>Everyone with positive Lupron stories, speak up! Share the joy. Those
>of you who are living in agony every single day as a result, keep your
>mouths shut. You're not allowed to share those stories here. This
>forum is only for the positive posts, folks.
>
>GROW UP AND GET REAL - the Lupron Victims will NOT be silenced and they
>WILL continue to share their stories until EVERYONE has heard. Only
>when a person has ALL the information necessary can they make an
>educated decision about a treatment! "Positives only" is as ignorant as
>your post.
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