Re: Lupron
From: Dawn (anonymous@obgyn.net)
Mon Aug 30 17:10:37 2004
Anonymous,
I am so glad that you have had a good experience with Lupron. I truly
mean that. What you say is true, we cannot believe everything we read.
We must really check out the validity of our resources. And, the
negative posts regarding Lupron on this forum are anecdotal, and there
ARE many of them. However, when we experience something similar to
someone else, and our doctors tell us that they don't know what is
causing our problems, and we hear others expressing the same symptoms,
well, then that's validation, and that IS support for many of us. I
can't tell you how many nights I cried myself to sleep going through
this, praying, LORD, please help me, help some doctor figure out what is
wrong with me and help me. It was an absolute nightmare. But, it's
getting better, as more time passes since the last injection.
I could be wrong, but -- this forum IS for support, but also for the
sharing of information, isn't it? Would it be honest to censor out the
negative posts on Lupron? My belief is --let's get it ALL out in the
open!!! If we stick to the facts as we have experienced them, or share
reference materials that we come across, and try to be objective, then I
don't see what the problem is. Does it bother you that some of us have
been through a nightmare with Lupron? You say that you don't want to
stop someone from taking Lupron who might benefit from it, who might
have a positive experience such as yourself. Good, post that! Are there
better, more reliable sources that you've found with information about
Lupron? Post them!
I've got enough to get through with all my side effects than to worry
that I might offend someone on the forum if I share what I truly went
through after taking the Lupron injections.
I am sorry if hearing what some of us have gone through might scare some
people, but if I had been smart enough to do some research and not just
take the word of my doctor, I would have never taken the Lupron, and
saved myself a lot of pain, money, and tears. I wouldn't be in the
situation I'm in today. I call that learning from others' life
experiences. And it's up to each individual, how to make her own
decision. I've never told anyone what to do in any of my posts. I will
say that when you've been through a lot of pain, it is hard not to want
to "warn" others so that you can spare them. But, I realize that not
everyone has similar results after Lupron.
Also, I will say that I have seen many posts from individuals who have
had a positive experience with the Lupron. So, the information is here,
if folks only read through the archives. Both sides are represented.
BTW, my husband tells me not to read too much either. There are a lot
of scary things in the world, and God bless 'em, they are trying to
protect us. But, as good old Francis Bacon said, "Knowledge is power".
-Dawn :-)
At Mon, 30 Aug 2004, anonymous wrote:
>
>At Mon, 30 Aug 2004, anonymous wrote:
>>Ok I guess I'm really going to vent so here it goes. First of all don't beleive everything you read! Second of all, I feel the main reason we hear about all the negative side effects from lupron within this site is that we are all here looking for support. Very rarely do I come in here and see anything positive. It makes me sick when I read about someone scared to try lupron becuase of what they have read in here. I haven't had any side effects other than what my specialist told me I would have and I don't foresee me having any down the road.
>The recommended dosage is not suppose to exceed 6 shots, so the story in
>the "newspaper" stated that the woman had been on lupron for 18 months,
>maybe that could have something to do with it? Also, are all the lupron
>users taking the amount of calcium/vit D supplements that you are
>supposed to take while on lupron? Do you smoke on lupron?
>I understand and beleive that lupron has nasty side effects but I feel
>that people aren't giving something a chance becuase they are scared to
>death from everything they have heard, my husband often tells me not to
>read to much and now I know why!!
>Sorry for all of you who were given the option to take lupron and didn't
>because you were scared from what you have heard on here. Everyone
>reacts differently to everything and I don't know of one product out
>there that doesn't have potential side effects. I am fianlly pain free
>because of lupron and thank god for it!! That is something I haven't
>been able to say for the better part of my life.
>Grrrrrrrrrrrrrrrrrrrr!!!!
>>more info about all of it:
>>http://www.endocenter.org/lupron.htm
>>
>>--
>>anonymous!Grrrrrrrrrrr
>>
>>>At Mon, 30 Aug 2004, Jennette wrote:
>>>>Could you please share with me and others where you got your information, I would like to read about it.
>>>Thanks,
>>>Amanda P
>>>>I am reading a lot of people talking about Lupron shots and how this
>>>>stuff works.
>>>>
>>>>What I read is that this "drug" shuts down the pituitary gland and thus
>>>>stops hormones from being released. Not just estrogen, but all that the
>>>>pituitary gland controls. This drug does not affect the ovaries
>>>>directly so they aren't "trying" to compensate because they are getting
>>>>their orders from the pituitary gland which is in the brain.
>>>>
>>>>This "drug", Lupron.... is very powerful, it's nothing to take lightly
>>>>and probably is affecting people throughout their lives. Certainly
>>>>those people who are experiencing negative effects can attest to the
>>>>fact that they suffer for years after stopping the drug.
>>>>
>>>>I would almost bet, in years to come, this drug will be on the list of
>>>>drugs that induce harmful effects for the users. Remember, it was
>>>>produced to fight severe cancer of the prostate, and now it's being
>>>>passed out like candy to everyone with endometriosis since being
>>>>"approved" for this use. This doesn't make the drug safe. In time, I
>>>>believe we will once again see lawsuits by people who suffer damage due
>>>>to the use of this drug, just like so many others that aren't properly
>>>>and thoroughly tested before handed out to people who really don't have
>>>>enough information to make a decision whether or not to take it.
>>>>
>>>>The fact that doctors are pushing this drug makes me wonder about it. It
>>>>doesn't seem to be the "wonder drug" that the doctors make a fuss about.
>>>>
>>>>Jennette
>>
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