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Re: Diaphragmatic Endometriosis

From: anonymous@obgyn.net
Mon Aug 30 07:35:30 2004


At Sat, 28 Aug 2004, Lisa wrote: >
>I can't believe what I am reading. I had my gall bladder removed last
>month because of this phantom pain that hasnt gone away. I am so happy
>that this is not just something that my GI Dr. seems to think I have
>made up. I am sharing your tears, Terri. I go in for Laparoscopic
>surgery on Sept 8 and Im hoping and praying they see it all. I have
>adhesions from 2 C-sections that have sealed my uterus to the front of
>my abdomen and adhesions throughout. I never would have though
>endo/adhesions could do all of this. It is just a relief to get an
>answer.
>
>--
>Lisa
>
>At Thu, 29 Jul 2004, Terri wrote:
>>
>>Hi Laurie,
>>I just found someone finally who is explaining my exact symptoms! I
>>would love to hear from you as now that I have basically diagnosed
>>myself, I need direction as to how to find a specialist who can help me.
>>Can you help??? I am in tears just knowing now I may have found why I
>>have been in such pain.
>>Thanks!
>>Terri
>>
>>At Sun, 25 May 2003, Laurie wrote:
>>>
>>>I would really appreciate information on diaphragmatic endometriosis. I
>>>am trying to see if the symptoms I experience fit with the symptoms of
>>>diaphragmatic endometriosis. Basically, I have pain under my right rib
>>>off and on and in varying intensities ranging from a background type of
>>>annoyance to a hot, flaming pain that feels like it will bore a hole
>>>right through me (I feel it in the front and back). I also experience
>>>terrible neck and shoulder pain.....and its all on the right. I do have
>>>a hietal hernia and wonder if that plays any part. I have taken all of
>>>the meds for GERD but they don't seem to help this pain. I've had my
>>>gallbladder removed - but still have pain. I have noticed lately, that
>>>if I use my had to push downward on the area between my ribs, it
>>>decreases the pain slightly. Another way that I would describe the pain
>>>is like a "side ache" or "stitch" that runners get (I also get the pain
>>>when I run, but have it terribly when I sit or lay down, as well). And,
>>>last but not least, I go through bouts of terrible, terrible pressure on
>>>what feels like my kidneys. It wakes me up at night and the only thing
>>>that seems like it might help is to urinate. However, urinating doesn't
>>>help and I am forced to get up, no matter what time it is, in order to
>>>move around a bit to help dissipate the pain.
>>>
>>>Does any of this make sense?
>>>
>>>I would REALLY appreciate any leads!!!
>>>
>>>-Laurie
>
>--
>LIHbb@aol.com
>

I HAVE THAT TOO!!!!! I can't believe that some one else finally know what kind of pain I have!!!!! You can not even undersatand how happy I am right now. I started having that pain while I was pregnant with my second child (4 years ago) I thought that It had something to do with pregnancy. I kept telling my doctor, and finally six weeks after she was born he ordered a sonogram for my gallbladder... nothing! Since then I have had 3 sonograms, and one trip to the E.R. because of that pain. They said acid reflux, and told me I was stressed out with the new baby( my third child was 9 months old) and gave me a shot of morphine that did not really help!

Everytime I mention it to my doctor(S) they tell me it is just acid reflux(which I have never had a problem with... ever!) Mine is that same burning sensation that comes, and goes!! And it's under my right rib.

Please let us know what your doctor suggest, so I can ask my doctor about it, without the funny look of(I don't know what you mean?!%&?)

Wendy






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