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Re: NO Lupron, NOW it's BC
From: Amy (anonymous@obgyn.net)
Mon Aug 30 07:28:24 2004
You definitely did not do anything wrong and should pat yourself on the
back for not getting intimidated and for sticking up for yourself!
Sounds like he doesn't like someone being more educated than himself,
which is so common with doctors and endo. I think those of us that
suffer with it know more than most of them! I think that is a big blow
to those egos, especially if they are male! Do what you need to do and
see if you can find a better doctor. I had one who kept telling me that
I should get pregnant to cure my endo. This after my hubby and I had
repeatedly told him we are not interested in having children. Plus, if
he knew anything, he would know there is no cure for endo, especially
pregnancy! I finally gave him the boot and found a wonderful new Doc who
listens and really cares. Do not let him make you feel like you were
wrong. I say: You go girl!!!
Hugs!
Amy Meyer
At Mon, 30 Aug 2004, indra wrote:
>
>At Sat, 28 Aug 2004, Tina wrote:
>Thanks. I am only just ridding myself of the feeling that I did
>something wrong. He was a smart doctor, but not comfortable with me
>being educated or allowing me to suggest possible alternative options
>than what he was prescribing. Nor was he willing to accept endo as a
>hormone immune deficiency disease. I asked him how I could get a test
>to measure certain hormones and he said he didn't know and didn't offer
>to find out. I asked for Bone Density test and he begrudgingly
>accommodated stating he didn't think my insurance would cover it because
>I am so young - 33. I responded they should because I have been
>chemically induced into menopause. I guess he didn't like that. Sorry
>to begin ranting. Thanks again. I need to keep reminding myself, I
>didn't do anything wrong. And if any others have read these postings
>Please remember it is you own body, doctors are not all knowing and have
>egos like the rest of us. Don't be ashamed and intimidated by your
>doctors. You have every right to question and learn about this disease.
>
>>I hear you. I had the same problem when I found out I had Endo. I had
>>3 doctors treat me like dirty because I was a 22 year old educated woman
>>that was not going to just do what they told me to do. Only you know
>>what is best for you. I too refused to take any further Lupron/Depo (I
>>had both) non-stop for a year. I went through major side-effects (some
>>of which I still have 10 years later). The hardest was weight-gain (now
>>I can't loose weight for the life of me). I had a few years of relief
>>with the BC. I did take a week off about every 3-4 months (just to
>>allow my body a cycle). However, over the last 2 years, the BC was
>>causing me more pain so I stopped them all together. My doctor did
>>recommend Acupuncture and after 4 weeks of treatment (2 times a week) I
>>had minimal pain (and the only time I had the pain was during my cycle).
>>I continued it for 3 months and was able to go off the pain pills.
>>Unfortunatley, it was 1 1/2 hour drive for me and recently became
>>unemployed. I had to stop due to the long drive and the cost of the
>>treatment. A lot of insurance will not cover the treatment. I would
>>encourage you to try the acupuncture. It may work for you too.
>>Regarding the surgery, keep looking for someone to help you. It sound
>>like your doctor was intimated by you questioning him. Keep looking.
>>One of the problems I've had is that most of the doctors have no idea
>>what the pain is like and therefore they can't relate.
>>Good luck and stay strong!
>>Tina West
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