ENDO Messages for August, 2004: Re: NO Lupron, NOW it's BC

Re: NO Lupron, NOW it's BC

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From: indra (anonymous@obgyn.net)
Mon Aug 30 00:37:46 2004

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At Sat, 28 Aug 2004, Tina wrote: Thanks. I am only just ridding myself of the feeling that I did something wrong. He was a smart doctor, but not comfortable with me being educated or allowing me to suggest possible alternative options than what he was prescribing. Nor was he willing to accept endo as a hormone immune deficiency disease. I asked him how I could get a test to measure certain hormones and he said he didn't know and didn't offer to find out. I asked for Bone Density test and he begrudgingly accommodated stating he didn't think my insurance would cover it because I am so young - 33. I responded they should because I have been chemically induced into menopause. I guess he didn't like that. Sorry to begin ranting. Thanks again. I need to keep reminding myself, I didn't do anything wrong. And if any others have read these postings Please remember it is you own body, doctors are not all knowing and have egos like the rest of us. Don't be ashamed and intimidated by your doctors. You have every right to question and learn about this disease.

>
>I hear you. I had the same problem when I found out I had Endo. I had
>3 doctors treat me like dirty because I was a 22 year old educated woman
>that was not going to just do what they told me to do. Only you know
>what is best for you. I too refused to take any further Lupron/Depo (I
>had both) non-stop for a year. I went through major side-effects (some
>of which I still have 10 years later). The hardest was weight-gain (now
>I can't loose weight for the life of me). I had a few years of relief
>with the BC. I did take a week off about every 3-4 months (just to
>allow my body a cycle). However, over the last 2 years, the BC was
>causing me more pain so I stopped them all together. My doctor did
>recommend Acupuncture and after 4 weeks of treatment (2 times a week) I
>had minimal pain (and the only time I had the pain was during my cycle).
>I continued it for 3 months and was able to go off the pain pills.
>Unfortunatley, it was 1 1/2 hour drive for me and recently became
>unemployed. I had to stop due to the long drive and the cost of the
>treatment. A lot of insurance will not cover the treatment. I would
>encourage you to try the acupuncture. It may work for you too.
>Regarding the surgery, keep looking for someone to help you. It sound
>like your doctor was intimated by you questioning him. Keep looking.
>One of the problems I've had is that most of the doctors have no idea
>what the pain is like and therefore they can't relate.
>Good luck and stay strong!
>Tina West

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