Re: Adenemyosis and hysterectomy vent
From: Angie (anonymous@obgyn.net)
Tue Aug 24 08:07:20 2004
Hi Jude and Amy,
I don't have any experience or advice to give, I just wanted to say that
I am sorry you guys are going through this. Dealing with endo on a pain
basis is bad enough but when you add in the whole
infertility/hysterectomy aspect, it's just plain awful. Good luck in
your decisions, and I hope that you both have some relief in the near
future.
Take care,
Angie
At Mon, 23 Aug 2004, Jude wrote:
>
>Hi Amy, thanks so much for your support, it is really helpful to know
>someone else is going through the same awful stuff. I hope that the
>lupron is helpful to you and you find some comfort in this difficult
>time.
>
>I have talked to a few women who have had hysterectomies and they say
>that it helped deal with the pain and they have gone from strength to
>strenth since. However, they have all had children and I haven't.
>
>My family are all pushing me to have this hysterectomy and think I
>should have had one instead of an excision surgery three months ago. A
>relative who is pushing me to have this surgery also spent the night
>crying because she won't be getting any grandchildren (if I have this
>surgery). She also thought that if I had a baby it would be deformed
>because of all the drug treatments and painkillers I have been taking.
>Sometimes family who try to be helpful are less than helpful. I am
>going to talk to a counsellor (who specialises in this area) before I
>make up my mind, and do some more research.
>
>--
>Jude.
>
>At Fri, 20 Aug 2004, Amy wrote:
>>
>>Jude,
>>
>>While I am not in the best emotional state myself to give someone advise
>>on how to cope with all of this, what I can do is tell you that you are
>>not the only person in the world going through this. As of last week, I
>>as told the exact same thing from my doctor.
>>
>>I know that neither the GnRH or the hysterectomy will provide an end to
>>this. I have read and talked to a friend about what Lupron, the GnRH my
>>doctor wants to use and about women that have had hysterectomies but
>>still experience pain. What kind of solution does either one of those
>>sound like!!!?
>>
>>I was diagnosed in 1992 and am so sick and tired of all of this. And,
>>as of wednesday, my husband has filed for divorce. Can things get any
>>worse? I knew that he was frustrated with the pain and doctors and
>>neverending treatment and pills but I had no idea that he honestly was
>>such a misunderstanding and selfish person. I am beginning to vent.
>>
>>I am 30 and have decided that I will probably try the Lupron for a
>>temporary fix, which usually my laps are used for that. Like you, I
>>have just recently had a lap along with removal of a fallopian tube -
>>june 2004. Since the surgery, I am in more pain than I ever remember
>>being in with this.
>>
>>I hope that you receive some help soon and let me know if you need to
>>talk. ( amcallister03@hotmail.com ) Keep remembering that you're not
>>alone although I know that is hard to do. Best of luck.
>>
>>At Thu, 19 Aug 2004, Jude wrote:
>>>
>>>Saw my Gyn today, who advised me on the basis of my symptoms and an
>>>examination that I am likely to have adenemyosis (spelling?), that the
>>>endo has got its way into the uterine muscle. His recommendations based
>>>on my history are either GnRH agonist treatment or hysterectomy. I have
>>>suffered with this for 3 1/2 years and I am not getting better. It has
>>>only been three months since my last excision surgery and I already back
>>>in severe pain.
>>>
>>>I have really tried everything from Naturopathy, acupuncture,to excision
>>>surgery (4 times) and pharmaceuticals (7 times including provera x2,
>>>depo-provera, dimetriose, zolaex, mirena UID, epilim for neuropathic
>>>pain).
>>>
>>>I am feeling distressed and overwhelmed by this decision as I am 31 and
>>>have no children. Please, anyone who is in this situation or had gone
>>>ahead with hysterectomy or GnRH agonist treatement, I would appreciate
>>>hearing your advice, support and experience. I have been bawling my
>>>eyes out all morning and I have to get myself together to see my
>>>clients. Please help,
>>>
>>>Thanks, Jude.
>>
>>--
>>Amy
>>
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