Re: Adenemyosis and hysterectomy vent
From: Jude (anonymous@obgyn.net)
Mon Aug 23 16:48:58 2004
Hi Amy, thanks so much for your support, it is really helpful to know
someone else is going through the same awful stuff. I hope that the
lupron is helpful to you and you find some comfort in this difficult
time.
I have talked to a few women who have had hysterectomies and they say
that it helped deal with the pain and they have gone from strength to
strenth since. However, they have all had children and I haven't.
My family are all pushing me to have this hysterectomy and think I
should have had one instead of an excision surgery three months ago. A
relative who is pushing me to have this surgery also spent the night
crying because she won't be getting any grandchildren (if I have this
surgery). She also thought that if I had a baby it would be deformed
because of all the drug treatments and painkillers I have been taking.
Sometimes family who try to be helpful are less than helpful. I am
going to talk to a counsellor (who specialises in this area) before I
make up my mind, and do some more research.
--
Jude.
At Fri, 20 Aug 2004, Amy wrote:
>
>Jude,
>
>While I am not in the best emotional state myself to give someone advise
>on how to cope with all of this, what I can do is tell you that you are
>not the only person in the world going through this. As of last week, I
>as told the exact same thing from my doctor.
>
>I know that neither the GnRH or the hysterectomy will provide an end to
>this. I have read and talked to a friend about what Lupron, the GnRH my
>doctor wants to use and about women that have had hysterectomies but
>still experience pain. What kind of solution does either one of those
>sound like!!!?
>
>I was diagnosed in 1992 and am so sick and tired of all of this. And,
>as of wednesday, my husband has filed for divorce. Can things get any
>worse? I knew that he was frustrated with the pain and doctors and
>neverending treatment and pills but I had no idea that he honestly was
>such a misunderstanding and selfish person. I am beginning to vent.
>
>I am 30 and have decided that I will probably try the Lupron for a
>temporary fix, which usually my laps are used for that. Like you, I
>have just recently had a lap along with removal of a fallopian tube -
>june 2004. Since the surgery, I am in more pain than I ever remember
>being in with this.
>
>I hope that you receive some help soon and let me know if you need to
>talk. ( amcallister03@hotmail.com ) Keep remembering that you're not
>alone although I know that is hard to do. Best of luck.
>
>At Thu, 19 Aug 2004, Jude wrote:
>>
>>Saw my Gyn today, who advised me on the basis of my symptoms and an
>>examination that I am likely to have adenemyosis (spelling?), that the
>>endo has got its way into the uterine muscle. His recommendations based
>>on my history are either GnRH agonist treatment or hysterectomy. I have
>>suffered with this for 3 1/2 years and I am not getting better. It has
>>only been three months since my last excision surgery and I already back
>>in severe pain.
>>
>>I have really tried everything from Naturopathy, acupuncture,to excision
>>surgery (4 times) and pharmaceuticals (7 times including provera x2,
>>depo-provera, dimetriose, zolaex, mirena UID, epilim for neuropathic
>>pain).
>>
>>I am feeling distressed and overwhelmed by this decision as I am 31 and
>>have no children. Please, anyone who is in this situation or had gone
>>ahead with hysterectomy or GnRH agonist treatement, I would appreciate
>>hearing your advice, support and experience. I have been bawling my
>>eyes out all morning and I have to get myself together to see my
>>clients. Please help,
>>
>>Thanks, Jude.
>
>--
>Amy
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)