ENDO Messages for August, 2004: Re: Adenemyosis and hysterectomy

Re: Adenemyosis and hysterectomy

From: Emma (anonymous@obgyn.net)
Mon Aug 23 10:04:09 2004

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Jill: "Re: LISTEN To Our Bodies?"
Previous message: Emma: "Re: Mirena coil question."
In reply to: Amy: "Re: Adenemyosis and hysterectomy"
Next in thread: Jude: "Re: Adenemyosis and hysterectomy vent"

At Fri, 20 Aug 2004, Amy wrote: >
>Jude,
>
>While I am not in the best emotional state myself to give someone advise
>on how to cope with all of this, what I can do is tell you that you are
>not the only person in the world going through this. As of last week, I
>as told the exact same thing from my doctor.
>
>I know that neither the GnRH or the hysterectomy will provide an end to
>this. I have read and talked to a friend about what Lupron, the GnRH my
>doctor wants to use and about women that have had hysterectomies but
>still experience pain. What kind of solution does either one of those
>sound like!!!?
>
>I was diagnosed in 1992 and am so sick and tired of all of this. And,
>as of wednesday, my husband has filed for divorce. Can things get any
>worse? I knew that he was frustrated with the pain and doctors and
>neverending treatment and pills but I had no idea that he honestly was
>such a misunderstanding and selfish person. I am beginning to vent.
>
>I am 30 and have decided that I will probably try the Lupron for a
>temporary fix, which usually my laps are used for that. Like you, I
>have just recently had a lap along with removal of a fallopian tube -
>june 2004. Since the surgery, I am in more pain than I ever remember

Hi Amy, it really is heart wrenching to hear your story, and its like i wrote it myself, I to have had endo for 8 years now and iam 33, married with no children . I have tried all the treatments bar the mirena coil, which iam due to have fitted on the 14th september, iam so hoping that this will give me some sort of relief otherwise like you i will be looking at a hysterectomy.It just seems so extreme does'nt it. Did you try the mirena coil at all?? I so hope that one day they will come up with some sort of miracle drug for this evil endo so that women like us no longer have to put up with this agony and can live a normal life as this is far from normal. I hope that you will soon be rid of this pain i really feel for you and you can be happy... Emma x

>being in with this.
>
>I hope that you receive some help soon and let me know if you need to
>talk. ( amcallister03@hotmail.com ) Keep remembering that you're not
>alone although I know that is hard to do. Best of luck.
>
>At Thu, 19 Aug 2004, Jude wrote:
>>
>>Saw my Gyn today, who advised me on the basis of my symptoms and an
>>examination that I am likely to have adenemyosis (spelling?), that the
>>endo has got its way into the uterine muscle. His recommendations based
>>on my history are either GnRH agonist treatment or hysterectomy. I have
>>suffered with this for 3 1/2 years and I am not getting better. It has
>>only been three months since my last excision surgery and I already back
>>in severe pain.
>>
>>I have really tried everything from Naturopathy, acupuncture,to excision
>>surgery (4 times) and pharmaceuticals (7 times including provera x2,
>>depo-provera, dimetriose, zolaex, mirena UID, epilim for neuropathic
>>pain).
>>
>>I am feeling distressed and overwhelmed by this decision as I am 31 and
>>have no children. Please, anyone who is in this situation or had gone
>>ahead with hysterectomy or GnRH agonist treatement, I would appreciate
>>hearing your advice, support and experience. I have been bawling my
>>eyes out all morning and I have to get myself together to see my
>>clients. Please help,
>>
>>Thanks, Jude.
>
>--
>Amy
>

Next message: Jill: "Re: LISTEN To Our Bodies?"
Previous message: Emma: "Re: Mirena coil question."
In reply to: Amy: "Re: Adenemyosis and hysterectomy"
Next in thread: Jude: "Re: Adenemyosis and hysterectomy vent"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: