ENDO Messages for August, 2004: Re: Lupron or Hystorectomy?

Re: Lupron or Hystorectomy?

From: Amy (anonymous@obgyn.net)
Wed Aug 18 07:06:14 2004

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In reply to: Penny: "Re: Lupron or Hystorectomy?"

I echo Penny's thoughts. I am one of the lucky ones who gets complete pain relief from Lupron with few side effects, either during the shots, or long term after they have stopped. I do notice achiness in my joints, but I have always experienced that, long before I ever heard of either endo or Lupron. Staying on the shots is up to you. It can take some time for the Lupron to kick in and make you feel better. The first time I did it, Doc said it could take a few months. Now I am on it again following my third lap and was pain free within a few weeks. I usually stay pain free for a year or better after stopping. So for me, it is worth the few side effects I experience from Lupron to feel normal for awhile. But everyone is very different, so it is hard to tell what will work for you. I don't know what you have tried, but I also found some success taking continuous birth control. And many women are finding relief with diet change and natural treatments like progesterone cream. Maybe those are a few other options you can consider.

Hope this helps a little! At least we can all understand. Hugs! Amy Meyer

At Tue, 17 Aug 2004, Penny wrote: >
>At Tue, 17 Aug 2004, anonymous@obgyn.net wrote:
>>
>>I have just recently been diagnosed with endometriosis and I am on my
>>3rd month of Lupron treatment. I have had no relief of pain and my
>>joints are now aching. I am wondering if I should stop the shots. I am
>>28 years old and I have not had children yet. I would like the option
>>of having children within the next year or so. That is why I chose to
>>treat the endo with Lupron. Just wondering if the Lupron will ever
>>relieve the pain or if I am causing myself more pain than it is worth.
>>Also wondering if anyone who has had a total hysterectomy has had any
>>relief?
>
>I've had extended treatments of Lupron. I must be one of the lucky ones
>because within a couple of months of treatment I was completely pain
>free (I am a severe, extensive stage 4). I also have expereinced many
>of the side-effects associated with Lupron, including most recently
>joint pain, but have found these to be much more manageable than the
>pain I was experiencing prior to treatment. I am not a good candidate
>for a hysterectomy, however, it would have been the last resort if I
>was. I am what seems to be one of the minority but my Lupron experience
>has had the most positive of outcomes - no pain! I hope this helps a
>little.
>
>--
>Penny
>

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