ENDO Messages for August, 2004: Re: Adjusting to Lupron

Re: Adjusting to Lupron

From: Ann (anonymous@obgyn.net)
Wed Aug 11 23:30:39 2004

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I had a 7 month course of Lupron and I received very little relief of pain during that time. As I recall, I felt like there was some improvement during the first few months, but by month 7 the pain was back to the pre-Lupron level and I began to develope new problems -- limb numbness, incoordination, hot flashes of course. I think that within a month after stopping the Lupron, I was finally moved up to oxycontin as my pain reliever, and was on the operating room table 4 months later for a hyster because the pain was so bad. So, I'm just over a year out from my hyster, started hormone replacement in February of this year, and am still suffering some LRQ pain (not nearly as bad as before the hyster). But, the worst part is my neurological symptoms have gotten no better -- in fact, they've gotten worse. I'm now in the process of trying to get a diagnosis but am quickly beginning to think the Lupron caused irreversible damage. Have you had any limb numbness, unexplained falls, headaches that last for weeks, vertigo so bad you can't get out of bed?

At Wed, 11 Aug 2004, ann wrote: >
>I have a question for all those who have tried Lupron. When I had my
>first 3 month injection, they said that the pain could get worse for 2
>weeks before it got better. They were right and it was the first 3
>weeks that were worse, with the 3rd being the worst. Had to go back to
>percocet.
>
>After that I felt great.
>
>Just had my second shot a week and a half ago and the same thing is
>happening. More percocet, only thing that works for me, and I'm feeling
>great but am concerned about taking a narcotic for any length of time.
>All I need next is to become dependant on a drug!!
>
> Anyone else have this happen?
>
>Ann

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