ENDO Messages for August, 2004: Re: Anyone been told 'it's in your head'??

Re: Anyone been told 'it's in your head'??

From: Denise (anonymous@obgyn.net)
Tue Aug 10 21:40:46 2004

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In reply to: Amy: "Re: Anyone been told 'it's in your head'??"

Hi,

I'm glad you're trying another doctor. I am in the same boat. It takes so much work and you're already exhausted from the pain and run-around from other doctors. Make sure you have a copy of every record of your own. Then you can make copies yourself and take them where you need to and save time (they have to do this...you do not have to have a doctor's name to release your records to...just say you have to combine records chronologically from several doctors and you need them yourself, if you get resistence).

Write down everything you can think of as far as symptoms (maybe keeping a journal would help here). Combine your records, for past history, and symptoms in some kind of logical form on paper. Then when you see the doctor, you have all info ready and hopefully eliminate some of the trial-and-error method by the doctor. If you use endo research, make sure you qualify it by its credible source (the doctor's name who wrote the article or paper, medical web sites like university hospitals, JAMA, New England Journal of Medicine, ACOG, etc.). Most doctors hate the fact that patients "read up on the internet" because they think they are basing decisions on what someone else said on a forum (although this forum is great).

Some other resources for valid endo info based on expert research and clinical studies are the Endometriosis Research Center, the Endometriosis Association, the Center for Endometriosis Care, National Women's Health Information Center, and some medical university sites (include clinical study search).

Hope this helps a bit.

Take care, Denise --endo diagnosed 1987

At Tue, 10 Aug 2004, Amy wrote: >
>Thank you, it's nice to know I'm not the only one. I agree, I know my
>body better than anyone. And the pain is all too familiar. I have
>called another dr. and he is supposed to be calling me back. I just
>hate starting over. I still have an appointment with my old dr. and so
>if I can't get into this dr. in time.I am going to still take the
>appointment with my old dr. and really make him listen to me and what
>my body is telling me. But thanks for the support. I will find the
>right dr. it's just such a process. :)
>At Mon, 9 Aug 2004, anonymous@obgyn.net wrote:
>>
>At Mon, 9 Aug 2004, Amy wrote:
>>>
>>>I have battled endo. for six years now. I have had nine surgeries
>>>including two post complete hysterectomy. I am experiencing chronic
>>>pain that is all too familiar. I went to my dr. about 1 1/2 years ago
>>>w/ servere pain and he told me it was in my head (something similar to
>>>post tramatic stress)well the pain continued, so I tried again. I
>>>begged him to do surgery just to look. It end up that my appendix was
>>>infected all the way through due to the endo.!!! Well now there is pain
>>>again and I need to go back but I'm afraid that he will once again tell
>>>me it's in my head (there's nothing in you)But I know my body and what
>>>it tells me. Any advise??? I know I caould go to another dr. but I've
>>>tried that and it takes months to get anywhere because either they don't
>>>believe me, have to wait to see records, or think that it's in my head!!
>>>I'm frustrated, in pain, and I can't sleep. Any advise???
>>
>>AMY...IT'S NOT IN YOUR HEAD. I HAD ATOP NYC DOCTOR TELL ME THE SAME
>>THING AND I WANTED TO SLIT MY WRISTS! THANKFULLY I FOUND AN AMAZING DR
>>WHO BELIEVED EVERYTHING I SAID AND TRUSTED THAT I KNOW MY BODY! YOU ARE
>>THE ONLY ONE WHO IS IN TUNE WITH CHANGES....FIND ANOTHER DR!!!! BEG THE
>>NURSE TO SQUEEZE YOU IN...TELL THEM THAT YOU'RE DR TOLD YOU IT IS IN
>>YOUR HEAD AND YOU'RE DESPERATE....HAVE ANY DR YOU KNOW CALL TO GET YOU
>>AN APPOINTMENTMENT!

Next message: kami: "Re: I'm curious..where are you?"
Previous message: Denise: "Re: Doctor Referal"
In reply to: Amy: "Re: Anyone been told 'it's in your head'??"

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