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Re: Do I have endometriosis?

From: Alisia (anonymous@obgyn.net)
Mon Aug 9 11:14:10 2004


I had a cat scan because the doctor wanted to look at my lower abdominal area. They only thing they could find was that my colon was fuller than the average persons which was obviously from the antibiotics he had me on because they made me constipated. So he refered me to a gastroenterologist who cant even get me in until sept. 21st. I AM IN SO MUCH PAIN RIGHT NOW! The pain killers help some of the pain but its like two different kinds of pain. Its hard to explain. I dont know what to do. I think it might be endo but then again it much be IBS or something more serious with my colon but I just dont know what to think anymore. I am working 7 days a week in horrible pain and nobody can help me. How long am I supposed to go on like this, because I dont know how much longer I can. Sorry about complaining but man I need to do it to someone because nobody else thinks there is anything seriously wrong but when you are in pain almost everyday all day long there is something SERIOUSLY wrong. And I dont know where to go for a doctor that specializes in endo? I like in western washington, does anyone know where I could go? So you can have pain all the time with endo? Sex is sometimes painful not all the time and I have pain with bowel movements quite often. And the only other thing is I am tired all the time. I know I work a lot but its not enough to make me feel like this. I am only 19 I should have tons of energy. PLEASE SOMEONE HELP ME!

At Sat, 7 Aug 2004, Lynn wrote: >
>At Thu, 29 Jul 2004, anonymous@obgyn.net wrote:
>>
>>Alicia,
>>
>>Sorry to be blunt, but you really need to find a new doctor who is more
>>familiar with Endo. Your current doctor obviously does not, if he said
>>you would not have pain after your period if it was Endo. I think most
>>of us can attest to the fact that we've had pain before, during and
>>after our periods. Sometimes just at one time or sometimes all at the
>>same time.
>>
>>Also, your cysts could be causing symptoms that feel like IBS. Mine
>>did. I was SO sure that I had Endo on my bowels before my last surgery.
>>Turns out it was cysts and Endo behind the bowels causing all the
>>problems.
>>
>>Why are you getting a cat scan? Endo will not show up on that.
>>
>>At Wed, 28 Jul 2004, Alisia wrote:
>>>
>>>Well they found two cysts on my left ovary and the doctor wasnt even
>>>going to tell me about it. The nurse told me on the way in because I
>>>asked if it came back normal. The doctor was almost done with the
>>>appointment and I was like well what do the cysts mean on my left ovary
>>>and he said they are nothing to worry about and that was it. And I
>>>asked him about endometriosis and he said it isnt even a possibility
>>>because my period is over and I am still having pain. Also my blood
>>>test showed the I am anemic because normal levels are 20 and I am at 45
>>>which means there is inflammation somewhere but they dont know where.
>>>And I am on doxycycline in case its a bacterial infection but they have
>>>done nothing to help, all its done is make me constipated. So I go in
>>>for a cat scan tomorrow afternoon and if they still cant find anything
>>>wrong then I am going to go to the womens clinic in my area instead of
>>>the family doctor who has done nothing to help. I had to ask for pain
>>>medication because he didnt offer it up and the pain is so bad at times
>>>that I cant walk. I think it might be IBS but I dont know because
>>>before I started taking this antibiotic I was going #2 everyday, so I
>>>dont think it could be bowel problem but what do I know I am no doctor,
>>>but then again my doctor isnt very helpful either. Thanks for
>>>listening.
>>>
>>>At Tue, 27 Jul 2004, Tabitha wrote:
>>>>
>>>>Hi Alisia,
>>>>
>>>>I'm new here as well. It sounds like endo to me. I have those same
>>>>symptoms as most of the women here probably do. The way I describe the
>>>>pain is that it feels like someone is reaching up inside me and trying
>>>>to pull everything out while little people are in there stabbing me with
>>>>pitchforks!
>>>>
>>>>To see the endo you need to have a laparoscopy done. I don't believe
>>>>ultrasounds can see it. Make sure you have a good Dr who knows about
>>>>endo. If not, find one. I have been to a few over the last two years
>>>>since my symptoms returned after 10 pain free years. I recently got
>>>>another opinion at a women's hospital and the Dr told me that a lot of
>>>>times the Dr's do a lap and either get the first thing they see and quit
>>>>looking or they don't look hard enough and say that you don't have it.
>>>>
>>>>And from what I understand, as long as they can see it and get it out
>>>>then you should be good. Not always the case though.
>>>>
>>>>Good luck, know you aren't alone!
>>>>Tabitha
>>>>At Tue, 27 Jul 2004, Alisia wrote:
>>>>>
>>>>>I have been having severe abdominal pain during my last 3 periods. The
>>>>>last period it was so severe the pain went to my lower back and shot
>>>>>down my leg. I go in for an ultra sound today to see if they can see
>>>>>anything but my cousin told me that it sounds like endometriosis so I
>>>>>thought maybe I should do some research on it. Here are my symptoms:
>>>>>
>>>>>abdominal pain (different than regular cramps thought)
>>>>>heavy, clotty periods
>>>>>painful sex (deep)
>>>>>painful bowel movements (mostly during my period)
>>>>>nausea
>>>>>fatigue
>>>>>
>>>>>What do you guys think? Any suggestions or opinions on what it might be?
>>>>>It took 3 periods before my doctor would even do anything about it and
>>>>>now it so severe that I can barely do anything. PLEASE HELP!
>
>--
>Attn" ALicia,
>Do you get gas so bad from yours that alos causes your feet to freeze and sweats at night.
>I have previously wrote all about mine, so I want go through it all but this has been happening to
> me, please could you respond. Lynn
>




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