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Re: Lupron
From: Amy (anonymous@obgyn.net)
Fri Jul 30 10:24:51 2004
I too have been reading this discussion and felt compelled to respond.
While I am not taking sides with anyone, I do know that the scary things
I read on the Net kept me from trying Lupron for almost three years.
Finally gave in to trying it when I just didn't know what to do anymore
and it helped me so much! In fact, I am getting ready to do it again as
soon as the insurance approval comes through. I know I am lucky that I
seem to handle it well, besides the normal side effects like hot flashes
and night sweats. For me, I am willing to risk some side effects to get
ANY relief from this dreadful disease, even if I know the relief will
not last forever.
I think we should all be free to post our opinions, since this is what
the forum is for, but I think we should remember that these are just
opinions and that we are all very different. Thanks Jennifer for
speaking up, but thank you too, to all the others who gave their
opinions as well. I definitely would not push Lupron on anyone but at
the same time, I think it helps to hear positive stories about it too.
It isn't for everyone but for some of us it has helped tremendously. I
am glad to hear that many of you have found relief with natural remedies
too. Let's just all stick together and maybe we can beat this darned
disease!
Hugs to all!!
Amy
At Thu, 29 Jul 2004, Kim wrote:
>
>HI.. I have been reading this discussion all along and just wanted to
>add a short note... I was someone who came on before going on Lupron to
>get answers... ans they were scary, but it gave it a personalized look
>into the situation- I got to talk with real women who told me their up
>and downs. I am now on it, an although I haven't been successful I
>would never want to discourage another women from trying something to
>gain relief. I think this drug is just like many of the BCP's we have
>all tried (not in the traditional sense) but none of us have the same
>reactions with anything when hormones are involved. I think that goes
>for the natural remedies, pain medications etc. For the record....none
>of the side effects I have experienced have been any worse than the
>actual endo, so what did I have to lose? Good luck, KIM
>
>At Thu, 29 Jul 2004, anonymous@obgyn.net wrote:
>>
>>I must send out a great big 'THANK YOU' to all of you that have
>>responded, supported, and understood what I was saying! It took a lot to
>>stand up and say that especially given that we are all already scared
>>and feeling alone in dealing with this disease.
>>
>>(not sure if HTML works here but I'm trying so if not ignore it LOL)
>><font size">THANK YOU!!!!!
>>
>>To those that have argued my point, Opinions are like
>>rearends.....everyone has one and they are all different. But I must
>>say that, not in a rude or smart mouthed way, but it's true. But
>>please, take a minute and read what I put and I would say 'hear' me out,
>>but well, this is the internet. So at least think deeply about what I
>>said. I was not directing it to any one person. But there are a lot of
>>postings on here that scare women even more. And the factor is, if you
>>are scared enough......you won't try anything.......if women get scared
>>they are likely never to try the different medications (whether it's
>>Lupron or others) to try to better themselves, their daily lives, and
>>their own health in general. I just don't want anyone to suffer anymore
>>than WE already have. Let's encourage each other to get facts, but also
>>to try things because everyone has different results. Plus, if it works
>>for someone, well then, they feel better and have a better quality life.
>>But if we scare them away from everything......they never will try and
>>they will feel even more alone and in pain. Just take a moment and
>>really READ what I was TRYING to say! It's really not as bad as you are
>>coming back at me with.
>>
>>I just want this to stay a support group, not a whine session, a raise
>>cain session, a scare session, or anything like that and I have seen too
>>many postings in here that seem to be that way (I know everyone needs to
>>release every now and then and that I understand......but release by all
>>means......just release, share, and support...don't scare....we want
>>everyone to get all the info and help...not runaway scared :). I
>>searched long and hard for a support group online and this is the BEST
>>one I found out there! I don't want ANYONE to give up just because they
>>got scared..........So HANG IN THERE! It DOES get better and we are all
>>here for you
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