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Re: Lupron
From: Amanda (anonymous@obgyn.net)
Thu Jul 29 10:57:29 2004
You know I have to agree with Jennifer, Everyone take so many risks in
life why not take one that could possibly help. It seems to me that a
few certain people are attacking Jennifer now that she posted her
opinion because of her 'Good' experience. I think that some people are
mad baecause they didn't have very good results? Everyone reacts
differently to everything. I am on Lupron right now and I have no
problems other than the suggested side effects. I have taken risks with
the treatments I have tried,like having 2 surgeries. There are so many
risks with have an Anesthetic, I might not have woken up. But thats I
risk I was willing to take to possibly feel better.
I think the reason Lupron is the big talk, wether it be good or bad, is
because it's the drug out there right now with the ability to help
someone with Pain. I have done my research on the drug, talked with
many doctors and people that know about it, and what I have found is
that Scientific search proves that Lupron is very effective. You have
to be careful about what you read on the internet. Just make sure if
you are doing any type of research, you have the right resources.
At Mon, 26 Jul 2004, Jennifer wrote:
>
>I have something to say in regards to all this negativity about the
>Lupron injections. Everyone is different.....Everyone reacts
>differently to medications (i.e. Tylenol, Benadryl, Any OTC medication,
>All Prescriptions). I know that there are proven facts that show that
>the Lupron does cause some problems.....but what medication DOESN'T?????
>Ibruprofen and Tylenol affect your liver, too much of one vitamin in
>your system causes problems of different sorts, Stay Awake meds really
>mess you up and I don't want to get in to all they do! Even drinking tap
>water these days has chemicals that hurt your body in them! Think of
>this sometime: YOUR SHAMPOO HAS A CANCER CAUSING AGENT IN IT (used as a
>preservative) FORMALDYHYDE! Your body does NOT absorb all those vitamins
>you think are doing you so much good! NOPE! Over 1000 POUNDS of
>UNDIGESTED VITAMINS TO THE EXTENT THAT THEY COULD TELL WHAT BRAND found
>in the Tacoma River! Eating in a resteraunt.....second hand
>smoke......fruits and veggies with chemicals on them......laundry
>detergent.....softner....cleaners......
>
>Ok! What's my point here?? My point is that we are all very scared and
>feel very alone in dealing with this disease. We all know that there is
>not much help out there for us as far as medications, understanding, and
>even government/insurance help. As I said, EVERYONE REACTS DIFFERENT TO
>EVERYTHING! I think that YES! it's very smart to be aware of the
>negativities of the medication, BUT I don't think that we should word it
>so negative and with fear. I am not directing this to anyone
>person....I am just saying from what I have observed and in talking with
>people, they are getting scared. I mean, think about this, all the
>medications out there for us (whether it is something like Lupron, pain
>meds, birth control, any of it) are going to damage our body in one way
>or another and there is no SOLID solution for this disease out
>there.......but Lupron is an option! So is laser, cutting, hysterectomy,
>and all the other medications that go along with this. We are all at
>our wits end in dealing with this and their being no answer! I just wish
>that those that have had negative results from Lupron would maybe be not
>so "scary" in what they say.
>
>Myself, personally, I was on Lupron for over a year. I actually did
>very well on it. I was on Premarin along with the shot and yea, I had
>moods and hot flashes and so on.......but maybe I was lucky with not
>having any other long term problems. I am 31 years old now and still
>have no children. My endo covers inside and out of my uterus, cervix,
>and intestines. My tubes have been tangled together and tied to my
>intestines. They are also bilaterally blocked. I would not know what
>to do if I actually woke up one day NOT hurting. Period or not, I
>ALWAYS hurt........I lost my full term daughter in July 2003. After a
>very long struggle and everything being attempted, we decided to let go
>and let God. At full term, she was underdeveloped to the point she was
>the size of a 5-6 month old fetus. They could not let me deliver
>because they would lose me also. So I have an empty void in my life
>that can never be closed. I spent 9 months feeling her in me and in one
>instant....she's gone and I will never know what color eyes she had,
>what color her hair was, nor kiss her goodbye. They suspect the reason
>things went the way they did was because of the endo. Due to the amount
>of scar tissue, they have concluded (along with other things) that she
>was deprived oxygen, therefore, causing one of the complications. But,
>I wasn't supposed to be able to get pregnant because my tubes were/are
>bilaterally blocked. And yes, this all occurred after the
>Lupron...actually several years after I came off of it. I have to say,
>SOMETHING worked a little bit at least and that's more hope than I ever
>had before....even though I have the pain of the loss. And you know, I
>WOULD - IN A HEARTBEAT - TAKE LUPRON AGAIN! Like I said, maybe I was
>lucky.....but at this point with the Endo.......I'll try ANYTHING and
>stay with ANYTHING regardless of the results on myself.....to be honest
>ANYTHING is better than the pain I deal with....especially since I have
>cysts on my ovaries that rupture every few months because of the
>pregnancy. You know.....what do we want......live with the endo pain
>and infertility (most of us), or live with other pain.....actually we
>would like none of it....but if you have to make your choice what are
>you going to chose?
>
>I can't tell anyone what to do. Neither can anyone else. I think the
>best answer to the Lupron question is......Openly talk over your
>concerns and worries with your doctor. I know, some are not close to
>their Doctors, but I know I got VERY close to mine when we figured out
>what was going on and started taking steps to correct it. I understand
>it makes you tired, you hurt, everything else......that's menopause!
>Welcome to an early dose of it! And I say that having gone through it
>for OVER A YEAR! I feel for you.....but I won't scare you with "possible
>long term effects" because you know what.....getting in your car and
>driving to the store has a "possible long term effect".........
>
>Me personally.....I'll try anything....I want to have a family and be
>able to pass on my legacy..........Regardless of what it does to me....I
>almost died trying to have our daughter........but to me......that means
>more than me hurting.
>
>Talk with your Doctor about the pros and cons. Research and be
>open......ask about Estrogen along with the Lupron (since you are going
>into a "forced menopause") but please don't let the cons and postings
>here scare you so badly that you run WITHOUT finding out everything that
>you can. Remember everyone is different even though we have a common
>bond.
>
>I'm sorry to ramble, but I'm just so sick of seeing all the negatives
>come through and talking through email and on the phone to so many
>scared people who have read postings here.
--
Amanda
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