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Re: Outraged!!
From: Amy (anonymous@obgyn.net)
Wed Jul 28 22:50:27 2004
THANK YOU SOOOOO MUCH......
I'm 22 and have yet to experience an orgasism b/c of the pain. My poor
boyfriend of 5 1/2 yrs doesn't even truly know why....thank you soooo
much for letting me know i'm not alone.
At Tue, 27 Jul 2004, Michelle wrote:
>
>I think I've found my email twin...
>I feel the EXACT same way, about the docs, frustration, anger, and pain.
>I was diagnosed b/c my roomies in college dragged me to the er to make
>sure I didn't have appendicitis. There they "couldn't find my right
>ovary", couldn't tell if it was appendicitis, and basically didn't know
>what to do. I wound up going home from college and seeing my gyno and
>did lap, rest is history...aka hell.
>I kept going to diff docs b/c I swore it was my right ovary that hurt so
>much all the time. Most of the time it's a dull throbbing ache,
>sometimes it gets stabbing. pretty bad. I went to a fertility
>specialist (again, THOUGHT she was an endo specialist, but was not) at
>the cleve clinic. She determined the pain was too low to be ovary, and
>was nerve related. My ovary was fine. She suggested antidepressants
>for the nerve endings (physically) to sooth them, and calm my mental
>nerves as well. I have not yet, but have been told by 3 other docs to
>do the same for my "mental" state as well as to calm the nerves. (yeah,
>a few mood swings, hormone fluctuations...what can I say, I'm kinda
>crazy or depressed sometimes now...lol).
>
>My massage therapist is awesome and she discovered the source of the
>pain was a muscle/ nerve that has just had too much pressure put on it
>from the endo, uterus, etc. It's a branch off of a muscle connected to
>my uterus and it's very low right side down into the area where my thigh
>joins my hip. It hurts worst every time I have endo pain. It's just
>from too much trauma. At least that's what she says. My gyno and
>physician couldn't figure it out. I'm going to go on what she says. It
>sometimes radiates to my back too, do you get that? It hurts right now
>as a matter of fact. I would suggest talking to a GOOD licensed and
>well trained masso therapist. It may be similar to my situation. I
>guess....?
>
>OH, and I KNOW how PO'D I get when I read or hear about how most things
>are in "OUR HEADS". I feel guilty sometimes for hurting!!! And for
>having so many problems.
>Not to mention, I have had so many infections and this endo that I have
>never in my life been able to have an orgasim in ANY way. I'm freaking
>25 years old. Do you know how many docs have given me a list of "self
>help" books???? I try and explain, It kinda starts to just hurt and get
>too sensative when I get close, I just have to stop. It gets to be too
>much. MY GOD, believe me, I'd LOVE TO. I've been in love w/ a great
>guy and with him for 2 1/2 years. I can't even accomplish the feat
>myself!! I feel like I'm missing out on something everyone else has
>experienced but me. IT SUCKS. And only ONE doc actually agreed it's
>from all the trauma down there, but STILL suggested a sex therapist.
>AKA, check out my head..... >:(
>And that's all I can find on the internet, it's in your head....
>
>Well, sorry about how long this got. There's my tangent...lol
>
>I'm sorry you hurt so much!!
>take care,
>Michelle
>
>At Tue, 27 Jul 2004, Kim wrote:
>>
>>I have literaaly been sitting at my computer for the past 3 hours
>>(should be studying for finals but can't concentrate due to the pain
>>anyways) but I digress. I am outraged that almost every site I come to
>>feels the need to mention the fact that in almost 80% of chronic pelvic
>>pain cases there is an underlying psychological factor. They go on to
>>say that women who complain of pelvic pain commonly are sexually abused,
>>in troubled marriages, raped, etc. I am neither of these (but my heart
>>goes out to those who deal with these issues.) It makes me skeptical of
>>what my doctor is thinking when I keep coming back with no relief. I
>>have always been a sensible person, I hold a high GPA and have little
>>trouble managing most aspects of my life (with exception of endo!!) I
>>feel crazy because nothing works so far, (surgery, lupron, BCP.) I am
>>tired of complaining to those around me, I am tired of waking up and
>>going to bed in pain, and most of all I am tired of going to doctors to
>>"rule out" other causes. I feel like I am losing my mind because my
>>doctor can't figure out what is causing my right lower side pain, he
>>says that the endo should have responded to lupron (I have stage II) and
>>he keeps ordering different tests for the pain- CT scan, colonscopy,
>>blood work. I went to the ER when it was realy bad because I felt sure
>>something had ruptured, but was told it "was just a flare-up of the
>>endo." Has anyone else had a right, lower side pain, all of the time.
>>Besides the normal pelvic pain from endo, it is like a constant, throb
>>or heaviness.It is the same pain as other pelvic areas, just when they
>>seem to resolve a little this one pain is always there no matter what.
>>It is in the same area people would complain about appendicitis (trust
>>me because every doctor I see thinks they have discovered appendicitis
>>until it too is ruled out.) I am sorry to write such a long one, but I
>>am truly frustrated today. Thanks for listening and any responses, KIM
--
Amy
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