ENDO Messages for July, 2004: Re: anyone have endo and trouble with ovarys?

Re: anyone have endo and trouble with ovarys?

From: Lani (anonymous@obgyn.net)
Sun Jul 25 20:36:48 2004

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Anna, YOU ARE NOT ALONE!

Reading your forum brought tears to my eyes. Everything you wrote I feel and go through everyday of my life. I wake up with pain only to go to sleep with pain. I am 21yrs and have been fighting with "Female Problems", Well ever since puberty, and they only seem to be getting worst. I have had three surgeries on my overies(to remove LARGE cysts) as well as two seperate surgeries to remove ENDO as well as scar tissue from all the surgeries. ........my first surgery was in 02...I have had 5 surgeries and am going back in on the 27th..Tues. So thats 6 surgeries in 2yrs. I just sit and think, "I hardley understand whats going on with MY OWN BODY and EMOTIONS, how the heck is anyone around me ever REALLY going to understand how it feels to go through what I do EVERY SINGLE DAY". I reach points where I become very scared and feel very alone(sometimes I think that hurts more then the PhysiCAL PAIN). Everyone looks at me like I am this sickly being.... I am 5 8' and last weighed in at 111lbs, I cant keep any weight on...... and only continue to loose more. People ask "How is she ever going to make it on her own". I feel as if I am a burden on everyone.......like everyone walks on eggshells for the "THE SICK GIRL. And just because it not my HEART,LUNGS, or SOME VITAL ORGAN, how do they put it... they comfort me by saying "AT LEAST ITS NOT LIFE THrEATING". My life is threatened everyday.........."HOW DO YOU LIVE WITH THIS PAIN".... THATS MY ONLY CHOCIE... I HAVE TO LIVE WITH THIS! There is not a whole lot of things stronger then a SICK WOMAN FIGHTING TO LIVE HER LIFE, other then a GROUP OF SICK WOMEN FIGHTING TO LIVE THEIR LIVES! I am here for you if you would like someone to share expriances with or just to have a friend who would beable to say with 100% confidence I KNOW EXACTLY HOW YoU FEEL, I am here for you and any girl who comes across this forum and can realte..........email me at shines4ever4u@yahoo.com. And remember...... WE ALL HAVE A CHOICE WE CAN EITHER LIVE WHAT WE HAVE, OR DIE WITHOUT EVER HAVING!

At Sun, 25 Jul 2004, anonymous@obgyn.net wrote: >
>At Sat, 24 Jul 2004, Anna wrote:
>>
>>I'm 16 years old and i have had endo since i was 13 years old. It has
>>been so hard for me in every single aspect of my life. It has affected
>>me at school, at home, and with my friends...especially my friends. And
>>on top of having endo i also have had many complications with my ovary.
>>I have so far had 2 laporoscopys and both times they went in they found
>>my left ovary had twisted over my fallopian tube cutting off blood flow
>>which could potentially be really dangerous. The second time they found
>>it they tied it down so it couldnt happen again but the pain just never
>>stops. my gynocologist said that it couldnt come undone but i just know
>>thats what it is. i am in constant excrusiating pain and cant even do
>>anything anymore. im 16 years old and i cant even live my own life and
>>have fun and do the things that all my friends can go do. I cant even
>>go to the movies because the pain is so intense that i wouldnt be able
>>to stand sitting there until the end. I am also on my third month of
>>lupron which defanitly has had a negative outcome so far..i have
>>HORRIBLE mood swings, night sweats, headaches, cant sleep and worste of
>>all im starting to gain weight. I just feel like the vicious cylce will
>>never end. i just want to know if anyone else has experienced anything
>>similar to please let me know..i dont have anyone to talk to about it
>>and it would mean the world to me to have some support from someone in
>>my life. Thank you all so much, i know were all in this together.
>>
>>--
>>Anna
>
>Yes, my 15 yr. old daughter has ovary pain. Back in Oct. 2004, after
>she had a cyst ruptured, her dr. opened her up (dec. 04) and found her
>right ovary had laid over to her right side and was stuck. The dr.
>cleaned it up and said she respened her ovary. My daughter has had all
>the problems you have had. She has more right side pain then other
>areas. She hasn't been to school for over a year. He freinds have
>stopped calling. Now Aug, the 2nd she is to start high school. I am so
>up set that both of you (and others)don't get to have a normal so called
>teen life. I think you are the 1st teen I have found I will tell her
>about you and yall can email each other.

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