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Re: anyone have endo and trouble with ovarys?
From: Kim (anonymous@obgyn.net)
Sat Jul 24 11:10:40 2004
Hi... I am going through everything you just mentioned.I can really
sympathize about feeling alone... not just the big things, but
yesterday I was in class and having the worst hot flashes because of the
Lupron... I feel really self-conscious because I know people are
wondering why am I continually taking my jacket off and putting it back
on, sweating, and turning really red. I know that is stupid stuff, but
it is the little things that I feel no one can understand until they
have been there. I am so frustrated, today I really wanted to run but I
woke up with pain. It is such a depressing feeling t know how the day
is going to be as soon as I open my eyes. I was lucky enough to not be
diagnosed until 24, so I can't competely say we are in the same boat. I
am here any time you want to talk (or just complain) because I know how
it is not feeling like anyone understands. I even get sick of telling
my husband what is wrong because I feel like he thinks I'm being a baby
or complainer. I always feel better after coming on this forum and
getting things off of my chest. Please take care and know that we're
all here together. KIM
At Sat, 24 Jul 2004, Michelle wrote:
>
>Geeze Anna, I'm so very sorry about that. I was always told how early I
>had been diagnosed at 20, but 13 is just unimaginable. I can sympathize
>very much with you. Unfortunately it does affect your relationships in
>so many ways. Your friends don't, and can't, understand entirely what
>is going on with you. Please do not feel like a complainer or
>hypochondriac. You are not. What you are going through is very real.
>You know your body better than anyone else in the world and if something
>is wrong, go for a second opinion.
>
>I would also suggest talking to your doc about going to see a massage
>therapist. Ask around and see if you can find one that is very
>knowledgable about abdominal work. That can help a lot, but I would
>just make sure with your doc or a second opinion doc first to make sure
>your ovary is not twisted for sure again. I dont' know, but maybe the
>masso therapist can help with that too. But do not go to a spa for one.
>What city do you live in? I know a great one in the Cleveland area, and
>maybe someone on the forum would know of a good one in your area.
>
>Also, I myself gave in and finally started seeing a counselor only a
>couple weeks ago. I was wearing down mentally. I've been fighting this
>for 5 years. I should have gone earlier, b/c it turns out the hormones
>have been affecting my moods so much that I needed to go on anti
>depressants a while ago. I just kept trying to "suck it up" and deal
>with it. I didn't want that stigma attached to me. My gyno, a
>specialist, and a second opinion all agreed with the counselor,however,
>lol. At 16, I can't even imagine how much you are going through. So if
>you are seeing one, awesome, and if you are not, maybe you should. It
>definitely can't hurt, you know?
>
>Well, I hope I helped a little at least. Take care!!
>Michelle
>
>At Sat, 24 Jul 2004, Anna wrote:
>>
>>I'm 16 years old and i have had endo since i was 13 years old. It has
>>been so hard for me in every single aspect of my life. It has affected
>>me at school, at home, and with my friends...especially my friends. And
>>on top of having endo i also have had many complications with my ovary.
>>I have so far had 2 laporoscopys and both times they went in they found
>>my left ovary had twisted over my fallopian tube cutting off blood flow
>>which could potentially be really dangerous. The second time they found
>>it they tied it down so it couldnt happen again but the pain just never
>>stops. my gynocologist said that it couldnt come undone but i just know
>>thats what it is. i am in constant excrusiating pain and cant even do
>>anything anymore. im 16 years old and i cant even live my own life and
>>have fun and do the things that all my friends can go do. I cant even
>>go to the movies because the pain is so intense that i wouldnt be able
>>to stand sitting there until the end. I am also on my third month of
>>lupron which defanitly has had a negative outcome so far..i have
>>HORRIBLE mood swings, night sweats, headaches, cant sleep and worste of
>>all im starting to gain weight. I just feel like the vicious cylce will
>>never end. i just want to know if anyone else has experienced anything
>>similar to please let me know..i dont have anyone to talk to about it
>>and it would mean the world to me to have some support from someone in
>>my life. Thank you all so much, i know were all in this together.
>>
>>--
>>Anna
>>
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