ENDO Messages for July, 2004: Re: 3 mos post-hysterectomy chronic pain

Re: 3 mos post-hysterectomy chronic pain

From: Traci (anonymous@obgyn.net)
Thu Jul 22 08:47:23 2004

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At Sun, 3 Feb 2002, anonymous wrote: >
>At Fri, 2 Mar 2001, suzanne wrote:
>>
>>I had tah/bso for severe endo, adhesions and adenomyosis. Within 2-3
>>months after that surgery my pain came back with a vengence. I also had
>>severe bladder and bowel symptoms. Hysterectomy is not a cure for
>>endometriosis, so there is a chance you may still have endometriosis in
>>your pelvis.
>
>>I had surgery with an endo specialist 8 months after the tah/bso and he
>>found a great deal of endo left in me (even though the first doc swore
>>he got it all!).
>>
>>Endo was found on my bladder, ureters, colon, rectum, vagina, and broad,
>>round and utersacral ligaments. Plus my entire peritoneum was invaded
>>with endo. If your surgeon is not an endo specialist, he may not be
>>familiar with the many appearances of endo, including microscopic and
>>may have left some.
>>
>>The Endometriosis Sourcebook contains much information regarding
>>endometriosis continuing after hysterectomy. Also the following website
>>may be helpful: http://www.scmc.org/endo/html/reprint7.html
>>
>>It was a difficult time in my life, especially after going to the endo
>>of the line and still be suffering. But I am happy to say I am endo
>>free and pain free after 26 years with this disease. I only wish I had
>>known about the endo specialists sooner.
>>
>>You can e-mail me anytime at living@nwlink.com
>>
>>--
>>suzanne
>>
>>At Wed, 28 Feb 2001, anonymous wrote:
>>>
>>>Hello everybody,
>>>I am 3 mos post-op TAHBSO,for uterine wall thickness endo.I also had a
>>>prolasped sigmoid colon,cystic cervix & ovaries.My left ovary contained
>>>a large 4cm abcess.I was re-hospitalized 7 days post-op for multiple
>>>seroma's(fluid collections)recieved 7 days of IV antibiotics.I have been
>>>closly followed by my surgeon,CAT scans,labwork.All but one seroma has
>>>resolved and it is 3mm round buy 4 inches long and is located between my
>>>bladder and rectum.I have been on oral antibiotics(leviqin)until 2 weeks
>>>ago.
>>>I have chronic pain(threw away pain pills..didnt help noway)in my lower
>>>addomen,sharp,and intensed by walking,sneezing,laughing,and peeing.I
>>>have a chronic clear vaginal discharge which cultures negative for
>>>bacteria.I have been treated by my urologist twice this month for UTI.
>>>My spouse and I only recently attempted intercourse and noticed that the
>>>discharge became very heavy and I felt a sharp pain in the upper left
>>>vagina and left side pain.I also have developed right elbow
>>>pain,bilateral hip pain and sharp shooting pain down the backs of both
>>>legs when i stand from a sitting posistion,sometimes I have rectal pain
>>>as well.Sorry i have rambled,but I am really concerned,my Gyna just
>>>keeps telling me about the same.Will see him in the morning.Is this
>>>common so far out after surgery or has anyone else have or had the
>>>same??? Thanx
>>
>I just had a hysterectomy 3 months ago for fibroid tumors and had my
>cervix removed. I never imagined what was in store for me. I wish I
>would have researched possible complications w/ hysterectomies more
>thoroughly before I proceeded with it. I also had severe spasms of the
>bladder with incontinence (which really freaked me out - because I have
>never had bladder problems in my life) and bowel symptoms - severe
>constipation and gas. I don't have ENDO. I had severe lower back pain
>and pain running down my legs. The urethral incontinence and the back
>pain stopped after I had a procedure by an anesthesiologist who put a
>short catheder under the skin over the sacral nerves and injected it
>with depo-medrol. The back pain and leg pain went away almost instantly
>and has not returned and it has helped stop the urethral incontinence.
>It appears that during a hysterectomy or other major surgery the nerves
>in your back get traumatized and quit working until they regenerate -
>this may take up to six months. With the depo medrol injection it
>reduced the inflammation in the nerves in the lower back and the bladder
>started responding again and I started regaining control. This helped
>me, but there could be serious side effects by using depo medrol - but I
>did not experience any problems. I still experience excessive vaginal
>wetness and I don't know what I will do about that. I hope I have
>offered some information.

--
 May 2003 I had a partial hysterectomy done and after a few months the pain was all over in my abdomen and I still had my ovaries and had pain there as well, I went to the Er, and was sent to my doctor who did nothing, he acted like I was making it up, he waould not help me, finally in April 2004 went to a new doctor because my pain had been so bad but I had to go through all kinds of other tests then in May 2004 and on May 20th 2004 I had surgery again this time was laposcopic, and my whole abdomen was covered in scar tissue and my ovaries and tubes were removed. now I feel pretty good except I can't get rid of this pain on my left lower side, and it hurts, when I walk too much or when I sit, I have gained 10 lb since the surgery and can't seem to get it off, do you have any new answers for me, Thanks so much Traci

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