ENDO Messages for July, 2004: Re: Anyone else using Mirena IUD for endo pain, and your experiences with ovarian cysts?

Re: Anyone else using Mirena IUD for endo pain, and your experiences with ovarian cysts?

From: Monica (anonymous@obgyn.net)
Sun Jul 18 01:23:28 2004

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At Sat, 6 Mar 2004, Carrie wrote: >
>I am new to these boards and would like to post on my experience with
>endo. I was diagnosed 2 years ago after a laporoscopy and cautery. I
>had a "hunch" that it would be endometriosis as my mother has it, as
>does my auntie. I have suffered painful, heavy and irregular periods
>since I first began menstruating as a teen and also have cycles of
>diarrhea and constipation, though never been scoped or diagnosed with
>IBS. My experiences over the years with BC pills have been negative.
>Even on lower dose brands like Alesse, I would find myself becoming fat,
>weepy, neurotic and depressed, however I did find symptomatic relief
>from pain with the pill. After waiting for almost a year, I managed to
>get into an Endometriosis & Pelvic Pain Clinic, which I am very grateful
>for. I have found a very supportive physician who actually listens to
>me. While friends of mine who also suffer endo have had issues with the
>medical community not taking their pain seriously, I guess I have been
>lucky in my encounters with them. Maybe it's because I'm also an RN, I
>am able to have frank discussions with my care providers regarding my
>care. Anyway, because I am only at Stage 1-2 of endo, and cannot
>emotionally tolerate the pill, my specialist has laid out my medical
>options as being more surgery to look for adhesions/cysts, more NSAIDS
>(do they ever do a number on my tummy though), or the Mirena IUD. While
>IUDs are usually contraindicated for endometriosis because they tend to
>cause heavy bleeding and cramping, the Mirena will eventually and
>hopefully stop me from bleeding heavily, if at all. Since I have had it
>inserted though, I have had nothing but pain. Cramping pain, stabbing
>pain, pain that makes me empathize with men who get kicked in the
>testes. Emotionally, I am not noticing the birth control side effects
>since Mirena acts locally on the uterus and is not circulating in the
>blood stream in a very high quantity. However, being house bound in the
>fetal position, and missing many shifts of work due to the pain, is
>taking it's toll. Insertion was uncomfortable, because I have no
>children, my doc ended up having to anesthetize my cervix to get the IUD
>in, and I did feel mildly shaken up afterward.
>To get to my point though, I'm wondering if anyone else has had an
>experience like mine. The pain after insertion grew to be intolerable
>enough to send me to the clinic for tylenol 3, I began to think I had a
>possible cervical infection, but with the absence of fever, it wasnt
>likely. Turned out, I has been partially expelling my IUD. Ultrasound
>showed I had passed the body of the device about 2 cm down into my
>cervix, just short of it dangling into my vagina. My doctor, on my
>isistance put me on antibiotics prophelactically and pushed the IUD back
>into uterus. Infection risk was low, so I was game to try again. Turns
>out I now have a cyst growing on my right ovary (where a great deal of
>pain and pressure has been) and while it was only ovary sized in
>January, it appeared almost as large as my uterus in February on the
>ultrasound. We are assuming this is just a progesterone-cyst, a normal
>(but abnormally large and rapidly growing) thing and that it will be
>re-absorbed by my body. While the cervical pain is gone and the IUD
>seems to be doing its thing (though I have now been bleeding/heavily
>spotting for almost 2 1/2 months now), I am getting increasing
>discomfort in my right side, causing me to miss more work. I know this
>is a long post, but I am hoping that maybe one of the doctors in the
>forum may be able to give me any indication that this has happened to
>other women. How can you tell if one of these cysts is going away or if
>it has burst? Can they change from fluid filled to a chocolate cyst if
>there is internal bleeding? I get no relief from this discomfort with
>naproxyn, diclofenac or tylenol. While I am a medical proferssional
>myself, gynecology is not really my scope of practice. I have the
>basics, but really want to arm myself with knowledge about my disease.
>Anyone out there who can relate to this, please do! This disease, like
>any, is different for each individual, and I know I am using a
>relatively unconventional treatment method, so I'd just like some
>feedback.
>~cheers~

I also had a large cyst (18 cms long) develop IN my ovary within 3 wks. I had the Mirena insterted for 5 mos when this happenned, and had it inserted 2 months after delivering my last child by C section

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