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FrustratedFrom: Amanda (anonymous@obgyn.net)Fri Jul 16 22:36:00 2004
I was first diagnosed with Endo 4 years ago. I had my Son when I was 17 years old. I never once had a problem until I gave birth. I am now 21 years old and have more problems then ever before. After having my son I had noticed a pain like never before, It was always there, it never seemed to go away. Sex was way too painful, and the aches in my hips and legs was unbearable. Not only did I have to take care of my new baby, But I also had to deal with the pain. It took my family doctor 16 months to refer me to a Gyno. She never seemed to belive that I was actually in the amount of pain I said I was. Once I had seen the First Gyno, He had scheduled a laporoscopy 1 1/2 weeks later. He found I had Endo. Removed it and said that I should be pain free. 6 Months later Guess what.... The pain is back. So he says the typical "I don't know", So he sends me off to a new Gyno. That doctor puts me in for another laporoscopy 1 week later, Again more Endo. A couple months later the pain is back, So I goo in for a follow up and explain this to my docotor. What he told me shocked me. He told me that he didn't know enough about the endo, But what I should do is use sex toys....He said it was supposed to help. He also told me that if I didn't feel comfortable doing it myself, He knew someone who does it for a living. Needless to say I never went back to him. I have tried every birth control possible and nothing seemed to work. I was sent to a chronic pain clinic, and all they told me was that it was all in my head, and that I should sit down with other woman and talk about my problems. That should make it all better. Needless to say I never went back to them either. I went off birth control a year ago and was pain free until 4 weeks ago. I thought I was having a bladder infection. I went to the doctor and had an emergency ultra-sound done, they found some fluid but thats about all. I ended up in the ER earlier this week, and glad I did. I finally found a Gyno that actually understood what was going on, and didn't tell me the typical Lines "I Don't Know". They were originally going to give me a laporoscopy within the 12 hours of my stay, But the Gyno didn't feel I should have to go through a third ne just yet. I am now trying Lupron. Hopefully I have a good expirience, I am willing to try anything at this point. I was also asked that my boyfriend and I Think hard about our plans for more kids. I was told that if we were to have another child I should do it sooner than later. I think I am fortunate enough to have had a child when I did and a boyfriend who is supportive in everyway possible. I have not been able to conceive again so far, and I don't think I will. I was also told that if the Lupron does not work I will have to have another surgery. Yeah for me!!!! I wish everyone the best with their expiriences and thank you for reading my story.
-- Amanda
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